I fight for a cure for me & our amazing children❤️

Wednesday, September 11, 2019

My 9/11/01 experience ๐Ÿ˜ข

On this horrible day in our history, I decided to share and document what that day was like for me. I’m sure all of you reading this can also remember what your day was like. It’s not a day that any of us can easily forget๐Ÿ˜ข

In 2001 I was working at Intel Corporation. It was my second year there. I worked in Milpitas and drove there every day from Danville! Such a long horrible drive with many traffic jams. Dave Miller was leading our team and was a fabulous boss. I was working with some of our B2B partners and traveled all over the world supporting them.

One of my customers was Ariba. A new start up that was founded in 1996. My job involved making sure their software was compatible with our hardware. This included many meetings and customer business events and travel. On Sept 10th I flew to New Orleans to support our customers and to meet with Ariba and their partners. It was a huge event and was originally planned for several days.

I was out late on September 10th, entertaining customers and having a lot of fun. But when I woke up in the morning all the fun from the night before was forgotten immediately. The TV was on and I watched in horror as I witnessed the attack on our country. No words can describe my fear and sadness. I talked to my then husband Rick and my kids and did the best I could to calm my daughters down. They were worried about me but thankfully I was safe and fine.

The rest of that day is a blur. We pulled the staff together and started making plans for our customers to get home. Someone ordered rental cars, put people on trains and did whatever they could to support everyone who was stranded in New Orleans. That was a long and horrible day. Again, something I will never forget.

That night a few of us went out for dinner and drinks. Someone hired a bus to rent and it was decided that we would leave the next day. We cried, we shared our sadness, concern, shock and fear. We were numb and had a hard time comprehending what had happened. Everyone in the country was most likely feeling the same way we were.

The next day around 20 of us boarded a Greyhound bus and braced ourselves for a 2200 mile ride home. It was uncomfortable, it was long and boring and we were all dealing with our feelings about the horrific attack against our country. There were two drivers and they took turns driving. They also stopped so we could eat and stretch our legs every few hours. I remember stopping somewhere in Texas. The only reason I remember that is because I bought a cowboy hat! I’m not sure why other than I liked country music, and I had never been to Texas before. I still have it and it is a reminder of that day.

At one stop in the evening we got some beer and tried to play cards in the back of the bus. Someone put on a movie an hour or so later and I was so embarrassed to be sitting next to one of my customers watching Animal House! It was awkward and probably not the best choice of movies for us to watch.

I don’t remember how I got home after we arrived at the Ariba office. But what I do remember is walking into my house to a beautiful bouquet of flowers. It was the first time Rick had ever bought me flowers.

Today brings up all of these memories and all the sadness that we all felt, and continue to feel. The horror of it all and the stories that followed of all the casualties. I hope and pray nothing ever like this happens again. I think we all lived in fear for quite a while, thinking it might happen again. God bless America and God bless all of you who lost someone during this horrific and tragic terrorizing event๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป

Wednesday, September 4, 2019

Another decent month!

Good morning from my hospital room at UCSF. Sorry I haven’t blogged in a while. I always think about it but as the day goes on I get involved in activities and by the end of the day I don’t have the energy to write.

Bob and I had a nice visit to Sea Ranch in August and got to walk on the trail and enjoy the beautiful Pacific ocean. He also got to play golf with one of his good buddies, Lou Monville. That was my only out of town event in August. The rest of the month was filled with my lunch dates and some conference calls with the Mission & Vision sub-team that I’m on with the National Board. I’m very happy to be helping and working on this. It almost feels like I have a job which makes me very happy ๐Ÿ˜Š

I had an infusion - #3 for the Eli Lilly Tau Trial on the 15th. It went well and I always enjoy my time with the staff. And I love posting  pictures of my shoes - hoping some day Katy Perry will be my sponsor ๐Ÿ˜Š

The most exciting news I have is that I passed the written driving test! Well, actually I failed it the first time. I missed four questions. But thankfully I was able to take it again! I missed four the first time and only missed one the second time! Yipee๐Ÿฅณ Next step for me is the driving test. I think I will be ok but I will continue to practice safe driving and make sure I don’t speed during the testing.

I’ve had some down days and have been exhausted at times but most of the time I’m ok. I’m sleeping a little better and just take things slowly now. I injured my shoulders pretty bad in my yoga class and I’ve had a lot of pain at night. I finally decided to go to the physical therapist and that has helped. My right shoulder is healing but my left one still hurts. The bad news is I sleep on my side and that’s not possible with my injury - but I’m adjusting.

We had a fun day at the Giants game - actually it was the A’s game and they were playing the Giants! Kristen and Ryan came with us which was wonderful. Always love seeing them. It was really crowded and I was extremely anxious and almost had a panic attack standing in line for food. I really can’t handle crowds anymore and it took me a while to calm down once we got back to our seats. Next time I will let someone else get the food!
My energy fades in and out which continues to frustrate me! Some days I just go with it and spend some quality time with Rusty on the couch. He is an excellent comfort kitty. My favorite time is in the morning after I wake up and grab my espresso. I then go back to bed with my journal and Rusty always snuggles up against me while I write down my thoughts and prayers. He really is a good boy and a fabulous care giver!

I’m continuing to write a chapter for my StoryWorth book every few weeks. That’s been fun and such a great easy to leave a written legacy of my life for my family and friends. My last chapter was about my big brother Kevin and how his death effected me. It was a hard chapter to write but it was / is necessary to share. His death played a big part in my life and it taught me to cherish every day. To stay in touch with your family and friends. And not to wait for tomorrow if there’s something you need to do or say today! You never know what tomorrow will bring, or if there will be a tomorrow.

It’s tennis season and I’ve been glued to the TV watching the US Open. So happy that Serena is playing well and that Nadal made it to the Quarterfinals. I loved watching Coco Gauff too and am extremely impressed with her personality and her amazing tennis skills. She is definitely part of the future of this sport ๐ŸŽพ Hoping Nadal wins the men’s tournament this year! Go Rafa ๐ŸŽ‰

That’s it for now. I’m so glad I recovered from my MRI yesterday! Even with the Adavan I was anxious and uncomfortable, That has never happened before and I hope it doesn’t happen again! I was actually a little scared and had a hard time breathing at times. Thankfully they changed the music and I was able to calm down. Whew!

It’s almost time for my infusion #4 so I will stop now. I hope all of you had a great summer and are looking forward to the beautiful fall weather.  It’s one of my favorite seasons!

I continue to live well with Alzheimer’s and  can’t wait to work on the Governors Task Force On Alzheimer’s, along with my husband, Susan Demarois, Maria Shriver, Secretary George Schultz and many other Alzheimer’s advocates!

Thanks for continued love, prayers and support. Together we will #ENDALZ๐Ÿ’œ