I fight for a cure for me & our amazing children❤️

Friday, April 21, 2023

Spring has sprung🌸🌺

Happy Friday to all of you! It’s been a while since I’ve blogged but today seemed to be a good day for me to let you know what’s going on with me. 

I haven’t been in the mood to blog or to do much of anything. I’m still doing my meditation and Bible plans in  the morning with my espresso ☕️ And I like sitting outside! The birds bring me joy when the weather cooperates 🐦 

I’m still able to help Kristen with the babies and I love every minute of that. Unfortunately I injured my shoulder so I’m in a lot of pain and dealing with physical therapy every week. I can still hold the babies and play with them and feed them which is very gratifying! They are so darn cute and I love them to pieces 🥰

The big issue for me know is exhaustion and the lack of motivation. The headaches and ringing in my ears are getting worse. Most days I need to lay down and rest. I do have an appointment at UCSF soon and hope to see how my brain is functioning and what’s next. I’m hoping to get in another clinical trial too! I will let you know how that goes. 

Some days I stay home and rest but most days I force myself out for a walk and/or a lunch date with friends. Last week Bob and I were up in Chico and I was able to spend time with two of my dear friends - Michelle & Maria. We had SO much fun together when we were living there and it was the highlight of our trip. 

I did get to celebrate my birthday in Chico and I was so happy to share it with Carol! We have the same birthdays and enjoyed a lovely meal with Bob & Caitlin & Jonny 🎂 And I got to play with Carols dog Ellie! She likes to wake me up in the morning too 🤣

I’m still listening to audible while I rest and really enjoyed ‘Hello Beautiful’ by Ann Napolitano. ‘Spare’ by Prince Harry was good too! Right now I’m reading ‘Little Fires Everywhere’ by Celeste Ng. I’ve read it before but it was a very long time ago. 

So that’s my update for now! I will try to post some photos too. But sometimes my brain can’t handle that…. We’ll see how it goes today 😄

I appreciate all your support and I especially loved all the birthday wishes 💕 It’s very hard to believe that I’m 68 years old now. YIKES 😳 

Love & hugs and blessing to all of you my friends and family❤️