FAMILY

FAMILY
I fight for a cure for me & our amazing children❤️

Tuesday, December 31, 2019

Bring on the new year πŸŽ‰

Happy New Years Eve! Do you have plans? Are you going to a party or just laying low at home with friends? Bob and I have traditionally stayed  home and cooked a nice dinner and toasted each other with wine or champagne and watched a fun movie. I don’t really like being out on New Years. I’m afraid of the drivers and honestly there is no place more comfortable and calming place for me than my own house.

I like the fact that I can be in my PJ’s and hang out with Rusty and Bob and whoever else wants to stop by. I don’t need a fancy event - although I do LOVE to dance! One year we put on some music and I danced by myself  for a while. I’m sure Bob was entertained and I definitely had fun. I’m also still struggling with my shoulder pain / frozen shoulder and having ice on it really helps. It’s hard to do that when you’re out in public. Good news is I’m back in physical therapy and will also be getting another cortisone shot soon. My goal is no pain and full range of motion. Most importantly I want to be able to practice yoga 🧘🏻‍♀️ I miss it very much and have been doing my best to stay active - even if that means just walking around the neighborhood.

Since this is the last day of the year I thought I would jot down some thoughts / highlights of 2019. I cannot do this from memory but thankfully I have my calendar handy. These blogs help me go back in time and since my memory is failing, having a place to save all my thoughts and activities is helpful. So here we go - highlights from 2019 (in my opinion)😁

#1 - Kristen & Ryan’s wedding! It was a magical and beautiful day for me. I’m so thankful we have video and a ton of photos available so that I will never forget. The love was overflowing that day and I was so honored and grateful to have our family and friends there too. I couldn’t be happier for my daughter and son in law❤️


#2 - Sharing my journey of living with Alzheimer’s. I love speaking and using my voice to educate and to help remove the stigma of this disease. This year I had several opportunities to do so. Each one was special, rewarding and hopefully inspiring. Speaking at the Leadership summit in San Antonio was very special and my time in Chicago at the Power of Purple, sharing the stage with Dr Maria Carillo was a dream come true. Spending time with Maria Shriver at Move For Minds and sharing my journey with them was also really fun. I also really enjoyed my live interview with Being Patient’s founder Deborah Kan. All of these events keep me sharp and allow me to continue to use my brain. 



#3 - There are several fun trips we took this year but here are a few I really enjoyed. 1-Kristen’s Bachelorette in Scottsdale. 2-Bob’s birthday weekend in Santa Cruz. 3-Eagles concerns in Vegas with my brother and sister in law. 4-Maui trip with Monica & Michael. 5-Green Bay Packers football game. Definitely a  bucket list item for Bob. 6-Washington DC AIM Advocacy event. Best part was the dinner cruise the night we arrived. Unfortunately I got sick a few days later and missed the visits to Capital Hill.  7-Our annual Maui vacation with some extended time on Lanai. The cat sanctuary was a blast and every minute in the ocean and laying by the beach was incredible. Definitely one of my favorite places to travel to. 

#4 - Serving on the National Alzheimer’s Association National Board of Directors. It’s hard to explain my feelings about this position that I was so honored to receive. The caliber of people I met, the kindness, the relentless determination and so much caring and concern for me and all of us living with Alzheimer’s and other dementias. I learned so much and was able to use my voice. I was able to share my stories and my experiences and to also remind them how important the organization is to our family, and to all the people around the world living with AD and other dementia.



#5 - Lunch dates and quality time with my friends and family. I’m so thankful that I still get my Intel fix when I can chat and hear all about the industry and what’s new. I’m thankful for the continued friendships and for the texts and Facebook support I get from my buddies. I may be gone, but thankfully I am not forgotten. Working at Intel was enormously stressful and demanding but I wouldn’t change it for anything! I still ‘bleed blue’ and I hope next year my friends will keep on calling and texting and eating amazing meals with me! The same holds true for all my high school friends, my sister, my daughter and anyone else who wants to hang out with me! I’m available most days so let’s have some fun next yearπŸ˜„

#6 - I can still drive! I probably should move this to the top of my list because without a drivers license I would not be as happy as I am right now and I certainly wouldn’t be able to have lunch dates and driving myself wherever I wanted to go. I relish the freedom and I know i won’t have it forever. I do not take it for granted. I am very aware that this will most likely be my last year driving. I’m ok with that. I’m living in the moment and am grateful for Uber and Lyft so that when the time comes I know I won’t be stuck in the house depressed and lonely. 

#7 - One of my favorite events of the year is our annual Alzheimer’s Assoc Walk! This year the event was in San Ramon and I started fund raising very early. I extremely competitive and I do my best each year to be one of the top fund raisers. We raised over $35,000 and I am so thankful to all of you for helping us find a cure. I personally raised $20,000 and am the 2nd highest fundraiser behind the amazing Jim Voorhees who raised $31,000. Thank you to all of you for your support. For joining our team and walking. For dressing up and having fun on walk day and for joining us for lunch afterwards. I can’t wait for next yearπŸ’œ

So it's time for my lunch date and I want to post this even though I am not finished with my highlights. I will do my best to continue the highlights either tomorrow in 2020, or very soon. Writing this has taken over 2 hours today! I started in bed a long time ago and now it's almost noon. Thankful for your support and for understanding that I am living very well with AD but holy cow, there are some issues that I really wish would go away. More on that later.

Have a fabulous and blessed, fun New Years Eve! Be safe and spend time with people you love. And most importantly, make sure to 'do what makes you happy'.  That's what life is all about.

God bless you all and thank you for your continued support and prayers.  Please forgive the typo's and bad grammar.  πŸ˜πŸ™


Monday, December 16, 2019

Mahalo 🌺


 I’m sitting on our lanai on Maui enjoying the crashing waves, the beautiful palm trees and the sounds of children giggling and having fun. It’s our last full day here and as always, we’ve had a fabulous time. I’ve been coming here for years thanks to my dad who sold me his timeshare at Papakea in the late 90’s. It’s not fancy but its perfect for us. Being on the island gives Bob a chance to really unwind and relax. The ocean is healing and soothing and we appreciate every day over here. I also usually find a kitty friend to pet and play with while I’m here. This year we found a girl kitty. I named her Lucy and she’s
Lucy kitty
so sweet.



This year we were able to celebrate our anniversary on Lanai at the Four Seasons. We got married there and it’s a very special place for us. The condo is great but when we’re on Lanai we are pampered and are able to enjoy amazing meals and really relax. This year we also visited the cat sanctuary! I had been there earlier this year with my girlfriend and her husband but it was Bobs first time. The kitties did not disappoint! They were all over me and I was in heaven. Bob did a great job taking pictures too and I’m thankful to have them forever.  

We also had a private tour of the new Four Seasons Lodge. It’s been going through some serious remodeling and is not yet open to the public. The grounds are unbelievable. The property is definitely more of a retreat or a place to reconnect with yourself. It’s very exclusive now and I’m sure it’s extremely expensive. They have several yoga studios and these amazing 100 degree dipping pools that are in very private locations. While we were walking the grounds we ran into Larry Ellison who just happens to own 98% of Lanai! We hope to come back next year and spend a few days in heaven if possible. 

The six course meal we had following the tour was off the charts! I can’t even try to explain how delicious it was. My biggest regret is I didn’t take any pictures of the food! It was a special evening and one we will never forget. 

We also had a nice visit with my niece Mindy and her husband and their two adorable kids while we were here. It was nice to have a chance to color and love on them and get my ‘baby’ fix - even though neither of them are babies πŸ˜‚

We are in restaurant heaven and have eaten at Star Noodle twice. Had a beautiful and delicious dinner at The Montage. Enjoyed some Thai food at the food trucks down the street from our place. We started this food frenzy with the most amazing poke bowl I’ve ever had at the Ritz Carlton at Kapalua. Tonight we will end our trip with dinner at Girard’s in Lahaina. 

A few days before our trip I had another infusion for the Eli Lilly clinical trial and a full day of cognitive testing. It was rough but I made it through ok. It was pouring rain when we left and the drive home took us almost four hours. My buddy Steve was there too and his trip back to Modesto was just as bad. I am happy to be part of the cure and to help us find the right science to cure this darn disease but it really is a huge commitment and extremely taxing on my body at times. Thankfully the staff and physician assistants and all the nurses do their best to keep my smiling. 

Our plan was to leave the following day to drive up to Angels Camp for Thanksgiving but that didn’t happen. It was too dangerous and there was too much snow on the roads. So as usual, we made the most of it! Bob and I made a delicious turkey dinner including stuffing, mashed potatoes, yams and green beans! We turned those lemons into lemonade 😁 It was a little sad not to see any of our family but we made the most of it. 

So that’s my November / December update! The next big challenge for me is getting my frozen shoulder healed so that I can actually use my left arm! It was injured back in August and I’m finally scheduled for a cortisone shot and some serious physical therapy when we return. The pain is constant and thank goodness for ice packs and Advil. 

I hope you all had a great Thanksgiving and will be surrounded by love on the upcoming holidays. We’ve had a great vacation but I think Rusty is missing me and it’s time to come home 🐈 Many thanks to Sylvia and our neighbor Dennis for taking good care of him!

Love and blessings to all of you and I hope you will be surrounded by family and friends for the Christmas seasonπŸŽ„ God bless you and thank you for your support πŸ™πŸ»

Wednesday, November 13, 2019

‘‘Tis the season” πŸŽƒπŸ¦ƒπŸŽ…

It’s one of those beautiful fall days here in the East Bay! The sun is shining and I’m sitting in my back patio soaking up some vitamins D and watching the ladies play golf this morning. The leaves on the trees have turned and I am enjoying the warmth of the sun and the peaceful chirping of the birds.


Kristen is here for a few days while Bob is traveling and working hard in SLO. I love having her here and we always have such a good time together. We saw a movie yesterday and then watched 'The Voice' for a few hours. That’s not Bobs favorite show so it’s nice to binge watch when he’s traveling 😁

Last week I was actually able to travel with Bob down to Fresno. I haven’t done that in a long time and I was happy to spend time there, and have the chance to meet some of his work friends.  I have family there too. I was born there and went to grammar school for a few years before we finally ended up in Modesto. I was very young when we lived there but I do remember some of the landmarks around town, especially in the Tower district.

I was able to have lunch with my cousin Lauren and later that day spent some time with my cousin Meg Geary Hoff’s son, Kyle. I guess Kyle is my second cousin... I’m not sure how that works. Anyway, I had a great visit with everyone and especially enjoyed Kyle & his wife Amanda’s new puppy Luna! She was the cutest little thing. Their sweet daughter Berkley and I played together too and she read some books to me which was really specialπŸ’ž She is such a sweet child.

The sad part of my visit to Fresno was that I couldn't see my 92 year old Aunt Nancy, Kyle's grandma! She's in a senior living environment and their entire wing was on quarantine due to illness. No one could go in or out of the building. I was pretty upset but realized it was out of my control. Expectations can lead to disappointment so I try not to get my hopes up, but I definitely was sad I couldn't see her. 

 


The other big event that happened two weeks ago was our East Bay Alzheimer's Walk! I have been raising money most of the year and doing what I could to raise awareness and ask my friends and family to walk with us. We had a great crowd and a huge walk team! Thank you to all of you who donated and who were able to walk with us. I was holding the blue flower again this year with four of my friends who are also living with the disease. It was pretty powerful and emotional. No surprise there! We hosted lunch afterwards and at this point have raised over $34,000!

A week after our Alzheimer's Walk we traveled down to Los Angeles to speak and particpate in Maria's Shriver's fundraising event, Move For Minds. We've been attending this event for several years and it's always inspiring and encouraging. My good friend Teresa Valko was there too with two of her friends and we all had a great day.

The next day I was at the Orthodontist getting my new Invisoline Braces! Yikes, I've never needed or had braces in my life but my teeth have shifted so here I am at 64 years young with my first set! I've been doing well with them so far and they definitely have stopped me from snacking! I need to wear them 20 to 22 hours a day! 

On top of that, the next day I was UCSF for Infusion #6 for the Eli Lilly Tau clinical trial. I can honestly say these past few weeks have been the busiest I've had in a long time. Thankfully I have this entire week to rest, relax and enjoy this gorgeous weather we're having.

So that's what's been happening in my life, our lives. I am grateful every day for all your support, prayers and for my continued good health. I have lunch later this week with my sister and bestie Andi and next week Bob and I will be in Sacramento for our first meeting of the Governor's Alzheimer's Preparedness Task Force. I am so grateful for the opportunity to stay involved, especially considering that my term on the National Alzheimer's Assoc BOD has ended. My goal is to do the best I can and to use my brain and my voice every single day to raise awareness, funding and support to #ENDALZπŸ’œ 

I hope you all have a fabulous Thanksgiving holiday with your friends and family. This year we will be in Twain Harte with Bob's sisters and family and hopefully a few doggies πŸ˜ƒ


Sunday, October 20, 2019

October update πŸ˜€

Packers vs Raiders

Sitting at SFO waiting for our flight to take off. Bob and I are going to Green Bay to watch the Packers play the Raiders! Two teams that we like, but since we will be in Green Bay I’m rooting for Aaron Rodgers and the Packers 🏈

It’s been a busy few weeks and yesterday was extremely taxing. I got up early and drove to Pleasanton to take my ‘behind the wheel’ annual driving test. It’s always emotional and a little nerve wracking. This is the second time I’ve had to take this test. The DMV rep was extremely nice and chatty which helped me to calm down. The last guy was a real jerk.

We drove around Pleasanton and I had to drive on the freeway too. I use to work in Pleasanton many years ago when I was working for NCR and AT&T Computer Systems. I knew the area and felt pretty comfortable. To prepare for the test I also spent several hours driving back and forth to the DMV and driving on the side streets. It was really helpful and because the area was somewhat familiar to me I was pretty calm.

I missed 12 points on their test - but not sure what that means. The only thing I cared about was that I passed!! I’m not sure what next steps are but I am expecting an official document from the DMV in a few weeks. Whew! I’m willing to give up my car when the time is right but I feel like I’m aware, alert and very comfortable behind the wheel right now. Next year that could change and I will be ok with that too. Its all part of my new normal....

Last week was also a milestone for me. I finished my term on the Alzheimer’s Assoc National Board of Directors. I wasn’t ready to leave but rules are rules and those of us with the disease are only allowed a two year term. I truly enjoyed every minute with the staff and with all my fellow board members.

I met some amazing people who I know I will stay in touch with. I learned a ton about the research and the exciting breakthroughs in science. I served on a task force to update our Mission & Vision statement and thoroughly enjoyed every minute with the sub team. I used my brain and I added value.  I was heard and I was surrounded by people who cared about me. It was truly a highlight in my life and I hope and pray that I can see my fellow board members again very soon.

When I got back from Chicago I spent a few days with Kristen and Celly (her dog). Ryan was out of town and we had a good time. I spent some quality time with Celly too and loved having him jump on my bed and lay with me in the morning. And then before I knew it I was packing my warm clothes for a trip to Green Bay to see the Packers play the Raiders. And that’s where we are right now. Such friendly people and the Packer Hall of Fame was great. Bob was in heaven and I’m so happy we were able to do this together. We also drove out to Oconto, a tiny little town on Lake Michigan. It was beautiful and I’m glad we took the time to see the water.




Tomorrow we will watch the game and then fly home on Monday. I had another infusion a few weeks ago too and didn’t feel that great afterwards. It was infusion #5 for the Eli Lilly trial and maybe I was just tired, or maybe I am getting the drug and it’s effecting me. Who knows! Either way I will stick with it until we move to Phase 3, or it gets cancelled.

Our next adventure is in early November when we will join Maria Shriver and her team at Move For Minds! I’m excited to see her again and to share my story there with all the participants. I’m also looking forward to working with her on the Governor's Alzheimer’s Preparedness Taskforce! Bob and I will be there together and it will be great to be working together to help Californian’s deal with this epidemic.

That’s it for now. Life is good and I am blessed to have support and friends and activities to keep me going. I am definitely slowing down a little and need more rest, but that’s ok. I will keep doing what I can, while I can. Traveling and waking up early due to different time zones definitely takes its toll on me, but most days if I rest in the afternoon I can  be productive.

I also wanted to thank you for your donations and for your support for our Alzheimer’s Walk! We look forward to the event every year and this year I will be on stage again holding the blue flower along with some of my friends who are also living with this disease😁πŸ’ͺ🏼 We won’t make the top fund raiser this year but that’s ok. We have raised over $27,000 so far and I’m happy about that.  Buni’s Buddies will be there with our family and friends and I look forward to the walk every year. And happy to be raising funds to help us find a cure and support research and programs through the Alzheimer’s Association!

Onward and God bless you allπŸ™πŸ» Keep those prayers coming πŸ’œ

PS - the Packers won and Bob was in heaven! This was his dream trip and it did not disappoint!

UCSF CLINCAL TRIAL 

Wednesday, September 11, 2019

My 9/11/01 experience 😒

On this horrible day in our history, I decided to share and document what that day was like for me. I’m sure all of you reading this can also remember what your day was like. It’s not a day that any of us can easily forget😒

In 2001 I was working at Intel Corporation. It was my second year there. I worked in Milpitas and drove there every day from Danville! Such a long horrible drive with many traffic jams. Dave Miller was leading our team and was a fabulous boss. I was working with some of our B2B partners and traveled all over the world supporting them.

One of my customers was Ariba. A new start up that was founded in 1996. My job involved making sure their software was compatible with our hardware. This included many meetings and customer business events and travel. On Sept 10th I flew to New Orleans to support our customers and to meet with Ariba and their partners. It was a huge event and was originally planned for several days.

I was out late on September 10th, entertaining customers and having a lot of fun. But when I woke up in the morning all the fun from the night before was forgotten immediately. The TV was on and I watched in horror as I witnessed the attack on our country. No words can describe my fear and sadness. I talked to my then husband Rick and my kids and did the best I could to calm my daughters down. They were worried about me but thankfully I was safe and fine.

The rest of that day is a blur. We pulled the staff together and started making plans for our customers to get home. Someone ordered rental cars, put people on trains and did whatever they could to support everyone who was stranded in New Orleans. That was a long and horrible day. Again, something I will never forget.

That night a few of us went out for dinner and drinks. Someone hired a bus to rent and it was decided that we would leave the next day. We cried, we shared our sadness, concern, shock and fear. We were numb and had a hard time comprehending what had happened. Everyone in the country was most likely feeling the same way we were.

The next day around 20 of us boarded a Greyhound bus and braced ourselves for a 2200 mile ride home. It was uncomfortable, it was long and boring and we were all dealing with our feelings about the horrific attack against our country. There were two drivers and they took turns driving. They also stopped so we could eat and stretch our legs every few hours. I remember stopping somewhere in Texas. The only reason I remember that is because I bought a cowboy hat! I’m not sure why other than I liked country music, and I had never been to Texas before. I still have it and it is a reminder of that day.

At one stop in the evening we got some beer and tried to play cards in the back of the bus. Someone put on a movie an hour or so later and I was so embarrassed to be sitting next to one of my customers watching Animal House! It was awkward and probably not the best choice of movies for us to watch.

I don’t remember how I got home after we arrived at the Ariba office. But what I do remember is walking into my house to a beautiful bouquet of flowers. It was the first time Rick had ever bought me flowers.

Today brings up all of these memories and all the sadness that we all felt, and continue to feel. The horror of it all and the stories that followed of all the casualties. I hope and pray nothing ever like this happens again. I think we all lived in fear for quite a while, thinking it might happen again. God bless America and God bless all of you who lost someone during this horrific and tragic terrorizing eventπŸ™πŸ»πŸ™πŸ»


Wednesday, September 4, 2019

Another decent month!

Good morning from my hospital room at UCSF. Sorry I haven’t blogged in a while. I always think about it but as the day goes on I get involved in activities and by the end of the day I don’t have the energy to write.

Bob and I had a nice visit to Sea Ranch in August and got to walk on the trail and enjoy the beautiful Pacific ocean. He also got to play golf with one of his good buddies, Lou Monville. That was my only out of town event in August. The rest of the month was filled with my lunch dates and some conference calls with the Mission & Vision sub-team that I’m on with the National Board. I’m very happy to be helping and working on this. It almost feels like I have a job which makes me very happy 😊

I had an infusion - #3 for the Eli Lilly Tau Trial on the 15th. It went well and I always enjoy my time with the staff. And I love posting  pictures of my shoes - hoping some day Katy Perry will be my sponsor 😊

The most exciting news I have is that I passed the written driving test! Well, actually I failed it the first time. I missed four questions. But thankfully I was able to take it again! I missed four the first time and only missed one the second time! YipeeπŸ₯³ Next step for me is the driving test. I think I will be ok but I will continue to practice safe driving and make sure I don’t speed during the testing.

I’ve had some down days and have been exhausted at times but most of the time I’m ok. I’m sleeping a little better and just take things slowly now. I injured my shoulders pretty bad in my yoga class and I’ve had a lot of pain at night. I finally decided to go to the physical therapist and that has helped. My right shoulder is healing but my left one still hurts. The bad news is I sleep on my side and that’s not possible with my injury - but I’m adjusting.

We had a fun day at the Giants game - actually it was the A’s game and they were playing the Giants! Kristen and Ryan came with us which was wonderful. Always love seeing them. It was really crowded and I was extremely anxious and almost had a panic attack standing in line for food. I really can’t handle crowds anymore and it took me a while to calm down once we got back to our seats. Next time I will let someone else get the food!
My energy fades in and out which continues to frustrate me! Some days I just go with it and spend some quality time with Rusty on the couch. He is an excellent comfort kitty. My favorite time is in the morning after I wake up and grab my espresso. I then go back to bed with my journal and Rusty always snuggles up against me while I write down my thoughts and prayers. He really is a good boy and a fabulous care giver!

I’m continuing to write a chapter for my StoryWorth book every few weeks. That’s been fun and such a great easy to leave a written legacy of my life for my family and friends. My last chapter was about my big brother Kevin and how his death effected me. It was a hard chapter to write but it was / is necessary to share. His death played a big part in my life and it taught me to cherish every day. To stay in touch with your family and friends. And not to wait for tomorrow if there’s something you need to do or say today! You never know what tomorrow will bring, or if there will be a tomorrow.

It’s tennis season and I’ve been glued to the TV watching the US Open. So happy that Serena is playing well and that Nadal made it to the Quarterfinals. I loved watching Coco Gauff too and am extremely impressed with her personality and her amazing tennis skills. She is definitely part of the future of this sport 🎾 Hoping Nadal wins the men’s tournament this year! Go Rafa πŸŽ‰

That’s it for now. I’m so glad I recovered from my MRI yesterday! Even with the Adavan I was anxious and uncomfortable, That has never happened before and I hope it doesn’t happen again! I was actually a little scared and had a hard time breathing at times. Thankfully they changed the music and I was able to calm down. Whew!

It’s almost time for my infusion #4 so I will stop now. I hope all of you had a great summer and are looking forward to the beautiful fall weather.  It’s one of my favorite seasons!

I continue to live well with Alzheimer’s and  can’t wait to work on the Governors Task Force On Alzheimer’s, along with my husband, Susan Demarois, Maria Shriver, Secretary George Schultz and many other Alzheimer’s advocates!

Thanks for continued love, prayers and support. Together we will #ENDALZπŸ’œ


Sunday, July 21, 2019

Summer Update - July 2019 πŸ’₯

It's July already, actually we are almost at the end of the month. Time sure flies by! I've had a lot on my plate and some wonderful adventures so I guess it's time to share them with all of you.

In June on the 17th & 18th I THANKFULLY qualified for the Eli Lilly clinical trial and had my first official infusion. It was a two day affair so we were able to spend the night at the Omni Hotel in San Francisco. The first day was all cognitive testing and a full physical. Day two was my first infusion and it started at 8am. Everything went well even though it was a long day. We started at 8am and I think I finally got home at 5pm. Bob was there in the morning and then my girlfriend Sylvia came to relieve him and drove me home. I am extremely thankful for her support. It's a long drive and the traffic is normally pretty bad.

Thankfully there are no lingering effects because the next day I had lunch in Walnut Creek at True Food Kitchen with two of my Intel buddies, Melaine & Jean Ann. We had a blast and talked for hours! The food was fabulous as always. I am so appreciative of these lunch dates. They really lift me up!

The next few days were all about my daughers wedding! We picked up our dresses from the seamstress, created all the gift bags for the out of town guests and did all kinds of activities in preparation for the big day.

The rehearsal and the rehearsal dinner went well and we all had a great time. Kristen spent the night with us and together we went to the Country Club to meet up with all of her bridesmaids and the make up and hair stylists. We were there all day getting ready! I had no idea how much work it was to prepare. But it was a fabulous day and I was so happy to be there with her.

The wedding was beautiful and I walked her down the 'aisle', which was actually the grass, without falling or tripping on my dress. We were both extremely emotional but we pulled it together and held each other upπŸ‘°πŸ™

The reception was a blast and it was so much fun to have our family and friends, and all of Ryan & Kristen's friends there to celebrate. It was beautiful and everything went off as planned. There were many photos taken and I am thankful to have most of them on my phone. I love to look at them when I'm resting. They make me happy and I couldn't be happier for her and RyanπŸ’“

The day after the wedding I was thankfully driven to Felton to spend a few days of rest with my girlfriend Karen. It was so nice to sleep in and have litterally nothing planned. We went to Capitola and ate on the beach and walked around and shopped. I was also able to take her to my old house in Santa Cruz and show her my grammar school. Later that evening we had dinner at my nephews house and that was very special too. I love spending time with him and his wife and the meal was spectacular!

Karen drove me home on Wednesday and I was still pretty wiped out from the wedding and all the festivities. Bob and I spent some time alone and went to the movies and just hung out at home with Rusty. 

The resting was short lived and we were back at UCSF for Infusion #2 on Tuesday July 9th. It was another long day and an 8am start so we decided to spend the night at the Omni on Monday. We had another fabulous meal at Credo and went to bed really early.

The infusion went well and I was excited to wear a new pair of Katy Perry shoes! Every time I have an infusion I take a picture of my shoes and share it on social media with the hashtag #shoechallenge! One of my fellow dementia warriors, Steven Barbieri was there too so we took some photos and posted online. It's a long day so I always look for things to do to make it fun.

The following week I had several lunch dates. As I've mentioned before having something on the calendar really lifts me up! Spending time with my family and friends during the day keeps me going. So thank you again to many of you who continue to stay in touch and entertain me during the weekπŸ’œ

So that's about it! Yesterday I did see the Lion King with Kristen and today I went to church and then to lunch. Nothing too exciting, but again, it's great to spend time with people I love.

Next week my brother is coming to visit and on Wednesday my sister and my girlfriend Andi are coming for lunch. I don't have any other plans this month so if anyone wants to hang out and go for a walk or have a snack please reach outπŸ˜† 



I also want to thank all of you for your support and encouraging words! Every text, post and email really inspires me to keep fighting this disease! Yesterday was the three year anniversary of my diagnosis and I truly believe that I am doing well, and living well with Alzheimer's thanks to you, to God and to my faith in the power of prayer and positive thinking!!