FAMILY

FAMILY
I fight for a cure for me & our amazing children❤️

Wednesday, November 13, 2019

‘‘Tis the season” ๐ŸŽƒ๐Ÿฆƒ๐ŸŽ…

It’s one of those beautiful fall days here in the East Bay! The sun is shining and I’m sitting in my back patio soaking up some vitamins D and watching the ladies play golf this morning. The leaves on the trees have turned and I am enjoying the warmth of the sun and the peaceful chirping of the birds.


Kristen is here for a few days while Bob is traveling and working hard in SLO. I love having her here and we always have such a good time together. We saw a movie yesterday and then watched 'The Voice' for a few hours. That’s not Bobs favorite show so it’s nice to binge watch when he’s traveling ๐Ÿ˜

Last week I was actually able to travel with Bob down to Fresno. I haven’t done that in a long time and I was happy to spend time there, and have the chance to meet some of his work friends.  I have family there too. I was born there and went to grammar school for a few years before we finally ended up in Modesto. I was very young when we lived there but I do remember some of the landmarks around town, especially in the Tower district.

I was able to have lunch with my cousin Lauren and later that day spent some time with my cousin Meg Geary Hoff’s son, Kyle. I guess Kyle is my second cousin... I’m not sure how that works. Anyway, I had a great visit with everyone and especially enjoyed Kyle & his wife Amanda’s new puppy Luna! She was the cutest little thing. Their sweet daughter Berkley and I played together too and she read some books to me which was really special๐Ÿ’ž She is such a sweet child.

The sad part of my visit to Fresno was that I couldn't see my 92 year old Aunt Nancy, Kyle's grandma! She's in a senior living environment and their entire wing was on quarantine due to illness. No one could go in or out of the building. I was pretty upset but realized it was out of my control. Expectations can lead to disappointment so I try not to get my hopes up, but I definitely was sad I couldn't see her. 

 


The other big event that happened two weeks ago was our East Bay Alzheimer's Walk! I have been raising money most of the year and doing what I could to raise awareness and ask my friends and family to walk with us. We had a great crowd and a huge walk team! Thank you to all of you who donated and who were able to walk with us. I was holding the blue flower again this year with four of my friends who are also living with the disease. It was pretty powerful and emotional. No surprise there! We hosted lunch afterwards and at this point have raised over $34,000!

A week after our Alzheimer's Walk we traveled down to Los Angeles to speak and particpate in Maria's Shriver's fundraising event, Move For Minds. We've been attending this event for several years and it's always inspiring and encouraging. My good friend Teresa Valko was there too with two of her friends and we all had a great day.

The next day I was at the Orthodontist getting my new Invisoline Braces! Yikes, I've never needed or had braces in my life but my teeth have shifted so here I am at 64 years young with my first set! I've been doing well with them so far and they definitely have stopped me from snacking! I need to wear them 20 to 22 hours a day! 

On top of that, the next day I was UCSF for Infusion #6 for the Eli Lilly Tau clinical trial. I can honestly say these past few weeks have been the busiest I've had in a long time. Thankfully I have this entire week to rest, relax and enjoy this gorgeous weather we're having.

So that's what's been happening in my life, our lives. I am grateful every day for all your support, prayers and for my continued good health. I have lunch later this week with my sister and bestie Andi and next week Bob and I will be in Sacramento for our first meeting of the Governor's Alzheimer's Preparedness Task Force. I am so grateful for the opportunity to stay involved, especially considering that my term on the National Alzheimer's Assoc BOD has ended. My goal is to do the best I can and to use my brain and my voice every single day to raise awareness, funding and support to #ENDALZ๐Ÿ’œ 

I hope you all have a fabulous Thanksgiving holiday with your friends and family. This year we will be in Twain Harte with Bob's sisters and family and hopefully a few doggies ๐Ÿ˜ƒ


Sunday, October 20, 2019

October update ๐Ÿ˜€

Packers vs Raiders

Sitting at SFO waiting for our flight to take off. Bob and I are going to Green Bay to watch the Packers play the Raiders! Two teams that we like, but since we will be in Green Bay I’m rooting for Aaron Rodgers and the Packers ๐Ÿˆ

It’s been a busy few weeks and yesterday was extremely taxing. I got up early and drove to Pleasanton to take my ‘behind the wheel’ annual driving test. It’s always emotional and a little nerve wracking. This is the second time I’ve had to take this test. The DMV rep was extremely nice and chatty which helped me to calm down. The last guy was a real jerk.

We drove around Pleasanton and I had to drive on the freeway too. I use to work in Pleasanton many years ago when I was working for NCR and AT&T Computer Systems. I knew the area and felt pretty comfortable. To prepare for the test I also spent several hours driving back and forth to the DMV and driving on the side streets. It was really helpful and because the area was somewhat familiar to me I was pretty calm.

I missed 12 points on their test - but not sure what that means. The only thing I cared about was that I passed!! I’m not sure what next steps are but I am expecting an official document from the DMV in a few weeks. Whew! I’m willing to give up my car when the time is right but I feel like I’m aware, alert and very comfortable behind the wheel right now. Next year that could change and I will be ok with that too. Its all part of my new normal....

Last week was also a milestone for me. I finished my term on the Alzheimer’s Assoc National Board of Directors. I wasn’t ready to leave but rules are rules and those of us with the disease are only allowed a two year term. I truly enjoyed every minute with the staff and with all my fellow board members.

I met some amazing people who I know I will stay in touch with. I learned a ton about the research and the exciting breakthroughs in science. I served on a task force to update our Mission & Vision statement and thoroughly enjoyed every minute with the sub team. I used my brain and I added value.  I was heard and I was surrounded by people who cared about me. It was truly a highlight in my life and I hope and pray that I can see my fellow board members again very soon.

When I got back from Chicago I spent a few days with Kristen and Celly (her dog). Ryan was out of town and we had a good time. I spent some quality time with Celly too and loved having him jump on my bed and lay with me in the morning. And then before I knew it I was packing my warm clothes for a trip to Green Bay to see the Packers play the Raiders. And that’s where we are right now. Such friendly people and the Packer Hall of Fame was great. Bob was in heaven and I’m so happy we were able to do this together. We also drove out to Oconto, a tiny little town on Lake Michigan. It was beautiful and I’m glad we took the time to see the water.




Tomorrow we will watch the game and then fly home on Monday. I had another infusion a few weeks ago too and didn’t feel that great afterwards. It was infusion #5 for the Eli Lilly trial and maybe I was just tired, or maybe I am getting the drug and it’s effecting me. Who knows! Either way I will stick with it until we move to Phase 3, or it gets cancelled.

Our next adventure is in early November when we will join Maria Shriver and her team at Move For Minds! I’m excited to see her again and to share my story there with all the participants. I’m also looking forward to working with her on the Governor's Alzheimer’s Preparedness Taskforce! Bob and I will be there together and it will be great to be working together to help Californian’s deal with this epidemic.

That’s it for now. Life is good and I am blessed to have support and friends and activities to keep me going. I am definitely slowing down a little and need more rest, but that’s ok. I will keep doing what I can, while I can. Traveling and waking up early due to different time zones definitely takes its toll on me, but most days if I rest in the afternoon I can  be productive.

I also wanted to thank you for your donations and for your support for our Alzheimer’s Walk! We look forward to the event every year and this year I will be on stage again holding the blue flower along with some of my friends who are also living with this disease๐Ÿ˜๐Ÿ’ช๐Ÿผ We won’t make the top fund raiser this year but that’s ok. We have raised over $27,000 so far and I’m happy about that.  Buni’s Buddies will be there with our family and friends and I look forward to the walk every year. And happy to be raising funds to help us find a cure and support research and programs through the Alzheimer’s Association!

Onward and God bless you all๐Ÿ™๐Ÿป Keep those prayers coming ๐Ÿ’œ

PS - the Packers won and Bob was in heaven! This was his dream trip and it did not disappoint!

UCSF CLINCAL TRIAL 

Wednesday, September 11, 2019

My 9/11/01 experience ๐Ÿ˜ข

On this horrible day in our history, I decided to share and document what that day was like for me. I’m sure all of you reading this can also remember what your day was like. It’s not a day that any of us can easily forget๐Ÿ˜ข

In 2001 I was working at Intel Corporation. It was my second year there. I worked in Milpitas and drove there every day from Danville! Such a long horrible drive with many traffic jams. Dave Miller was leading our team and was a fabulous boss. I was working with some of our B2B partners and traveled all over the world supporting them.

One of my customers was Ariba. A new start up that was founded in 1996. My job involved making sure their software was compatible with our hardware. This included many meetings and customer business events and travel. On Sept 10th I flew to New Orleans to support our customers and to meet with Ariba and their partners. It was a huge event and was originally planned for several days.

I was out late on September 10th, entertaining customers and having a lot of fun. But when I woke up in the morning all the fun from the night before was forgotten immediately. The TV was on and I watched in horror as I witnessed the attack on our country. No words can describe my fear and sadness. I talked to my then husband Rick and my kids and did the best I could to calm my daughters down. They were worried about me but thankfully I was safe and fine.

The rest of that day is a blur. We pulled the staff together and started making plans for our customers to get home. Someone ordered rental cars, put people on trains and did whatever they could to support everyone who was stranded in New Orleans. That was a long and horrible day. Again, something I will never forget.

That night a few of us went out for dinner and drinks. Someone hired a bus to rent and it was decided that we would leave the next day. We cried, we shared our sadness, concern, shock and fear. We were numb and had a hard time comprehending what had happened. Everyone in the country was most likely feeling the same way we were.

The next day around 20 of us boarded a Greyhound bus and braced ourselves for a 2200 mile ride home. It was uncomfortable, it was long and boring and we were all dealing with our feelings about the horrific attack against our country. There were two drivers and they took turns driving. They also stopped so we could eat and stretch our legs every few hours. I remember stopping somewhere in Texas. The only reason I remember that is because I bought a cowboy hat! I’m not sure why other than I liked country music, and I had never been to Texas before. I still have it and it is a reminder of that day.

At one stop in the evening we got some beer and tried to play cards in the back of the bus. Someone put on a movie an hour or so later and I was so embarrassed to be sitting next to one of my customers watching Animal House! It was awkward and probably not the best choice of movies for us to watch.

I don’t remember how I got home after we arrived at the Ariba office. But what I do remember is walking into my house to a beautiful bouquet of flowers. It was the first time Rick had ever bought me flowers.

Today brings up all of these memories and all the sadness that we all felt, and continue to feel. The horror of it all and the stories that followed of all the casualties. I hope and pray nothing ever like this happens again. I think we all lived in fear for quite a while, thinking it might happen again. God bless America and God bless all of you who lost someone during this horrific and tragic terrorizing event๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป


Wednesday, September 4, 2019

Another decent month!

Good morning from my hospital room at UCSF. Sorry I haven’t blogged in a while. I always think about it but as the day goes on I get involved in activities and by the end of the day I don’t have the energy to write.

Bob and I had a nice visit to Sea Ranch in August and got to walk on the trail and enjoy the beautiful Pacific ocean. He also got to play golf with one of his good buddies, Lou Monville. That was my only out of town event in August. The rest of the month was filled with my lunch dates and some conference calls with the Mission & Vision sub-team that I’m on with the National Board. I’m very happy to be helping and working on this. It almost feels like I have a job which makes me very happy ๐Ÿ˜Š

I had an infusion - #3 for the Eli Lilly Tau Trial on the 15th. It went well and I always enjoy my time with the staff. And I love posting  pictures of my shoes - hoping some day Katy Perry will be my sponsor ๐Ÿ˜Š

The most exciting news I have is that I passed the written driving test! Well, actually I failed it the first time. I missed four questions. But thankfully I was able to take it again! I missed four the first time and only missed one the second time! Yipee๐Ÿฅณ Next step for me is the driving test. I think I will be ok but I will continue to practice safe driving and make sure I don’t speed during the testing.

I’ve had some down days and have been exhausted at times but most of the time I’m ok. I’m sleeping a little better and just take things slowly now. I injured my shoulders pretty bad in my yoga class and I’ve had a lot of pain at night. I finally decided to go to the physical therapist and that has helped. My right shoulder is healing but my left one still hurts. The bad news is I sleep on my side and that’s not possible with my injury - but I’m adjusting.

We had a fun day at the Giants game - actually it was the A’s game and they were playing the Giants! Kristen and Ryan came with us which was wonderful. Always love seeing them. It was really crowded and I was extremely anxious and almost had a panic attack standing in line for food. I really can’t handle crowds anymore and it took me a while to calm down once we got back to our seats. Next time I will let someone else get the food!
My energy fades in and out which continues to frustrate me! Some days I just go with it and spend some quality time with Rusty on the couch. He is an excellent comfort kitty. My favorite time is in the morning after I wake up and grab my espresso. I then go back to bed with my journal and Rusty always snuggles up against me while I write down my thoughts and prayers. He really is a good boy and a fabulous care giver!

I’m continuing to write a chapter for my StoryWorth book every few weeks. That’s been fun and such a great easy to leave a written legacy of my life for my family and friends. My last chapter was about my big brother Kevin and how his death effected me. It was a hard chapter to write but it was / is necessary to share. His death played a big part in my life and it taught me to cherish every day. To stay in touch with your family and friends. And not to wait for tomorrow if there’s something you need to do or say today! You never know what tomorrow will bring, or if there will be a tomorrow.

It’s tennis season and I’ve been glued to the TV watching the US Open. So happy that Serena is playing well and that Nadal made it to the Quarterfinals. I loved watching Coco Gauff too and am extremely impressed with her personality and her amazing tennis skills. She is definitely part of the future of this sport ๐ŸŽพ Hoping Nadal wins the men’s tournament this year! Go Rafa ๐ŸŽ‰

That’s it for now. I’m so glad I recovered from my MRI yesterday! Even with the Adavan I was anxious and uncomfortable, That has never happened before and I hope it doesn’t happen again! I was actually a little scared and had a hard time breathing at times. Thankfully they changed the music and I was able to calm down. Whew!

It’s almost time for my infusion #4 so I will stop now. I hope all of you had a great summer and are looking forward to the beautiful fall weather.  It’s one of my favorite seasons!

I continue to live well with Alzheimer’s and  can’t wait to work on the Governors Task Force On Alzheimer’s, along with my husband, Susan Demarois, Maria Shriver, Secretary George Schultz and many other Alzheimer’s advocates!

Thanks for continued love, prayers and support. Together we will #ENDALZ๐Ÿ’œ


Sunday, July 21, 2019

Summer Update - July 2019 ๐Ÿ’ฅ

It's July already, actually we are almost at the end of the month. Time sure flies by! I've had a lot on my plate and some wonderful adventures so I guess it's time to share them with all of you.

In June on the 17th & 18th I THANKFULLY qualified for the Eli Lilly clinical trial and had my first official infusion. It was a two day affair so we were able to spend the night at the Omni Hotel in San Francisco. The first day was all cognitive testing and a full physical. Day two was my first infusion and it started at 8am. Everything went well even though it was a long day. We started at 8am and I think I finally got home at 5pm. Bob was there in the morning and then my girlfriend Sylvia came to relieve him and drove me home. I am extremely thankful for her support. It's a long drive and the traffic is normally pretty bad.

Thankfully there are no lingering effects because the next day I had lunch in Walnut Creek at True Food Kitchen with two of my Intel buddies, Melaine & Jean Ann. We had a blast and talked for hours! The food was fabulous as always. I am so appreciative of these lunch dates. They really lift me up!

The next few days were all about my daughers wedding! We picked up our dresses from the seamstress, created all the gift bags for the out of town guests and did all kinds of activities in preparation for the big day.

The rehearsal and the rehearsal dinner went well and we all had a great time. Kristen spent the night with us and together we went to the Country Club to meet up with all of her bridesmaids and the make up and hair stylists. We were there all day getting ready! I had no idea how much work it was to prepare. But it was a fabulous day and I was so happy to be there with her.

The wedding was beautiful and I walked her down the 'aisle', which was actually the grass, without falling or tripping on my dress. We were both extremely emotional but we pulled it together and held each other up๐Ÿ‘ฐ๐Ÿ™

The reception was a blast and it was so much fun to have our family and friends, and all of Ryan & Kristen's friends there to celebrate. It was beautiful and everything went off as planned. There were many photos taken and I am thankful to have most of them on my phone. I love to look at them when I'm resting. They make me happy and I couldn't be happier for her and Ryan๐Ÿ’“

The day after the wedding I was thankfully driven to Felton to spend a few days of rest with my girlfriend Karen. It was so nice to sleep in and have litterally nothing planned. We went to Capitola and ate on the beach and walked around and shopped. I was also able to take her to my old house in Santa Cruz and show her my grammar school. Later that evening we had dinner at my nephews house and that was very special too. I love spending time with him and his wife and the meal was spectacular!

Karen drove me home on Wednesday and I was still pretty wiped out from the wedding and all the festivities. Bob and I spent some time alone and went to the movies and just hung out at home with Rusty. 

The resting was short lived and we were back at UCSF for Infusion #2 on Tuesday July 9th. It was another long day and an 8am start so we decided to spend the night at the Omni on Monday. We had another fabulous meal at Credo and went to bed really early.

The infusion went well and I was excited to wear a new pair of Katy Perry shoes! Every time I have an infusion I take a picture of my shoes and share it on social media with the hashtag #shoechallenge! One of my fellow dementia warriors, Steven Barbieri was there too so we took some photos and posted online. It's a long day so I always look for things to do to make it fun.

The following week I had several lunch dates. As I've mentioned before having something on the calendar really lifts me up! Spending time with my family and friends during the day keeps me going. So thank you again to many of you who continue to stay in touch and entertain me during the week๐Ÿ’œ

So that's about it! Yesterday I did see the Lion King with Kristen and today I went to church and then to lunch. Nothing too exciting, but again, it's great to spend time with people I love.

Next week my brother is coming to visit and on Wednesday my sister and my girlfriend Andi are coming for lunch. I don't have any other plans this month so if anyone wants to hang out and go for a walk or have a snack please reach out๐Ÿ˜† 



I also want to thank all of you for your support and encouraging words! Every text, post and email really inspires me to keep fighting this disease! Yesterday was the three year anniversary of my diagnosis and I truly believe that I am doing well, and living well with Alzheimer's thanks to you, to God and to my faith in the power of prayer and positive thinking!!

Wednesday, June 12, 2019

Good times in Chicago ๐Ÿ˜

It’s so beautiful here today! I’m in downtown Chicago for the Alzheimer’s Assoc National Board meeting. I arrived on Wednesday and won’t be coming home until Sunday night. A busy week for me, but I’m happy to be using my brain and adding value to some of the committees I’m on.

The flight out was great and thankfully I had an aisle seat. I got to the airport early and grabbed a latte and made it to the gate in time for early boarding. One of the huge benefits of living with and having what’s considered a disability, is that I get to pre board!! I am so happy to be one of the first people on the plane and to get my bag in the bin before things start getting too crowded.  The plane was almost 100% full by the time everyone else was boarding. Summer definitely brings all the families and makes for long lines!

I was also very happy to see my fellow board member & good buddy Karen on my flight! She’s such a great person and I always love spending time with her. We shared an Uber to the hotel and ate in the lobby so we could watch the Warriors game. Unfortunately it was not a great game and the Warriors lost to the Raptors, 123-109.

The next day I got up early for my committee meeting. This year I was asked to join a committee that is looking at our Mission & Vision statement. It was created in 2005 and it is time to perhaps modify and update the wording. I’m so thankful to be part of this and have been doing my best to add value and help shape the future. Thankfully all my years at Intel have prepared me for this type of work. It’s a little confusing at times but everyone is very kind and helpful, which I greatly appreciate.

Later that evening the rest of the BOD arrived and we had a lovely reception and cocktail hour. Many of the folks went out to dinner but I was exhausted so I sat with my friend Tom who also has Alzheimer’s, and his husband Levi. I had a fabulous dinner of prawns, lobster  and vegetables!

We had a drink and talked and I was sorry to hear that Tom, in addition to Alzheimer’s, has been diagnosed with Levy Body Dementia and Parkinson’s. He is doing the best he can and is a fabulous speaker and he and his husband have been very active with events and programs. I will continue to pray for them and for all of us who are living with this disease๐Ÿ™

The next day was the official start of our Board meeting but I didn’t need to be there until after lunch. I decided to be brave and to take a walk outside all by myself ๐Ÿ˜ I don’t know the area well but I felt certain I could find my way back - and I did!! I got in 2 miles and enjoyed the sunshine and then hurried over to the office with the help of Tom & Levi.

We had a research update that was awesome and followed with a fabulous formal dinner event. Afterwards I needed some rest and went straight to bed!

The following day was our final day and most folks left after the closed session. I had an event to speak at the next day so I was able to get some rest and spent a few quality hours resting and watching Netflix!

Sunday was fabulous and I was honored to speak at the Illinois chapter event ‘The Power of Purple’. There were over 200 people and I was very happy to see so many men in attendance. Most of these events are filled with women but it’s great to educate everyone about this disease.

I was on stage following Dr. Maria Carrillo who was giving an update on the science and the new research projects. I cried several times as I shared my story, more than I normally do. I’m not sure why but thankfully I held it together the best I could. We both answered questions from the audience afterwards which was a nice touch.


Following the event I met with Amy Boyle who is undertaking a year long weekly photo essay project. She’s highlighting 52 phenomenal women๐Ÿ’œ All those participating will be supporting the efforts of ‘Dress For Success’.  I was happy to donate to her cause and was honored to be selected and photographed! She’s fabulous and I am impressed with the great work she is doing.

I arrived home very late that night and got a few hours of sleep. I would have spent the day resting normally but I had signed up to be the hostess at our ‘Longest Day’ fundraiser event in San Ramon so that wasn’t possible. I ran around town buying balloons and grabbing purple items from the Alzheimer’s office in Lafayette so I could decorate and arrive by 4pm for our training! Yikes. That was a long day. But here’s the good news, actually the great news ๐Ÿ˜Š We raised $2000 that night in the fight to #ENDALZ๐ŸŽ‰

So today I slept in and then had a fabulous time with my girlfriend in Pleasanton at the mall. We ate lunch, went shopping and tried to get some exercise by walking the mall! Oh and we had some retail therapy at Macy’s too๐Ÿคฃ

Now it’s time to rest and love on Rusty, and listen to my book on Audible! It was another busy few days but I continue to be amazed & blessed by all the love and support that comes my way. Thank you all and God bless you ๐Ÿ™๐Ÿป You lift me up and keep me smiling๐Ÿ˜Ž



Monday, May 20, 2019

Never a dull moment ๐Ÿ˜

Happy month of May and happy spring to all of you. Happy Mother’s Day too ๐ŸŒทOur spring has included a ton of rain, but we are hoping for sunshine very soon! It’s been another busy few weeks, but I’ve had plenty of down time to spend time with my friends and sort through old family photos! I also started writing what will eventually be a book! I’m using the StoryWorth app. Every week they ask you a question and at the end of the year - or whenever you are done - they print all the stories into a book. I’m excited about it because I am able to talk about my mom and my family and what my life was like growing up. And it will be something my kids and grandkids will have forever. It’s been fun looking for old photos of my mom, or of me as a baby๐Ÿ˜ƒ

I spent some time at UCSF for the Eli Lily clinical trial at the end of April and was qualified to move forward to the next step. Last week I had a PET scan. In order to see the Tau in my brain they have to inject me with radioactive dye. I’ve had this procedure before and it doesn’t hurt. The PET scan is ok for me too. Only because it’s like a huge donut and my claustrophobia doesn’t kick in - thankfully!! This test is the most important part of the trial qualification. There are parameters in order to proceed so I am a little anxious about the results. I can’t have too much Tau, or too little Tau. It has to be just right. Sounds like Goldilocks and the three bears with their porridge! I should get some feedback this week so keep those prayers coming๐Ÿ™๐Ÿป If this trial doesn’t work out I’m hoping there will be something else very soon. I am not in control and I will do my best to take the information without having a breakdown. 

I had a meeting at the Alzheimer’s Assoc office this month and flew to Chicago by myself! I felt very comfortable and was able to navigate the delays and gate changes. I had a great dinner at the hotel and had a great chat about God and faith with a sweet waitress. I guess the cross necklace I wear every day gives me away!

The meeting was great and I always enjoy seeing my fellow Board members.  We did some good work talking about what’s changed in the past 14 years since our Mission & Vision statement was created. I look forward to our next meeting in June and in the mean time will be doing my best to come up with some good language for our new mission/ vision! I’m extremely happy to be part of this and to have a ‘job’ of sorts. It definitely gives me a purpose and keeps my brain active. 

My extended birthday celebrations continued too and I had lunch with my friends and did some shopping and chatting and a lot of laughing! I like it when my birthday celebrations carry into the next month๐Ÿ‘๐Ÿผ๐Ÿ˜

I was really excited to be interviewed via live video chat this month with Deborah Kan, the founder of  ‘Being Patient Alzheimer’s’. Her mom has Alzheimer’s and she is a former author and columnist who is using live video chats to educate and inform others about Alzheimer’s. She has done many interviews and they are all great. Check out the link online if you are interested. My video is online as well and on my Facebook page. I was happy to share my story and to do my best to inspire others to get involved in fighting this disease!

So as you can see I’ve had another busy month. This weekend we had my daughters bridal shower and it was lovely and perfect! I gave her a cookbook that my mom had given me and I wrote in it so that when she uses it she will hopefully feel my love ❤️ She’s not much of a chef right now but she has plenty of time for that. My niece hosted it and it was so much fun to see some of the Bonnington’s and spend time with Kristen’s friends and bridal party. My sister and one of my best friends drove up too from Modesto!

Today is my sweet grandson Michael’s birthday! He’s nine and I can’t wait to celebrate with him. He’s getting so tall and really growing up but he’s still a goof ball and makes us laugh. It was so nice to talk with him and sing him a happy birthday song๐ŸŽ‚

Rusty is here with me and continues to be an amazing care giver๐Ÿˆ He really does lift me up when I’m having a bad day.

Bob and I are traveling together this weekend to see Phil & Elizabeth and our sweet grandson Benjamin. I’m very excited about that!

During the down days I’ve been listening to books on Audible. I’ve read some amazing books and am happy to share them with you. Most have been psychological thrillers but one of my favorites was ‘Where the Crawdads Sing’. Check it out if you can. Listening on Audible has been much better than reading and for some reason I seem to remember things better that way.

So that’s my update! Now it’s time for a rest. And thankfully Rusty is here next to me to keep me warm. Thank you all for your continued love, support and prayers.  And for all the local folks please
join us for our Alzheimer’s Assoc Longest Day event at Gianni’s Italian Bistro in San Ramon on June 10th! Reservations are required through Yelp or by calling the restaurant at 925-820-6969! They are donating 10% of all sales and 100% of the tips๐Ÿ’ฐ I will be the hostess that night and all the servers are volunteers or staff from the NorCal/NorNevada Alzheimer’s Association ๐ŸŽ‰๐ŸŽ‰ It will be a great evening.

Much love and blessing to you๐Ÿ’œ๐Ÿ™๐Ÿผ๐Ÿ’œ