I fight for a cure for me & our amazing children❤️

Monday, March 23, 2020

Social Distancing - Week one

Greetings from an extrovert who is struggling with SOCIAL DISTANCING! UGH. I know its important and critical for us to stay home but I miss talking to people!!

Today is Day 7 of what I'm calling lockdown. It has been a pretty good day so far. I was extremely excited because I needed to pick up my Invisalign braces at the orthodontist! Getting in my car was wonderful and I turned my radio volume up loud and sang to every song! I had less that a 5 minute chat with one of the staff and thankfully walked away with several months of braces! Yippee. Now my teeth will continue to shift into place and the bonus was I got to experience freedom and talk to another person.

Today is Monday but of course it doesn't feel like a Monday. All the days seem to mush together and its hard to keep track of time and of the day. My last blog was at the end of February and some fun things have happened since then. The event I mentioned with Claire Day from the Alzheimer's Assoc was fabulous. We sat in front of the room together and Claire asked me a bunch of questions about my diagnosis, my journey with clinical trials, events I've been involved with, etc. Afterwards the staff asked questions. It was a lot of fun and since this was a pharmaceudical company I know they will potentially make some changes based on our conversation.

Friday of that week I also had an amazing lunch with one of my high school buddies. We hadn't seen each other since the Alzheimer's Assoc Walk last year. We ate outside and one of my favorite Danville restaurants and then walked on the Iron Horse Trail for a few miles. It was a lovely day, not too hot and definitely not too cold. Many thanks to Jane for taking the time to come visit me!

The following week I had another infusion for the Eli Lilly clinical trial, #10 I think. It went well and I posted some fun photos of my shoes which everyone seems to like. Two days later we were back at UCSF for an appointment with my neurologist. Dr Fanny Elahi. She is fabulous and I always love spending time with her. She was very pleased and happy to see that I haven't really changed from our last visit. She said I was doing great and that she is also very optimistic about BIOGEN and some of the other drug trials. Bob and I walked away very pleased! Kristen was listening on the phone too. It's helpful if we all have the same information.
Clinical Trial Shoes :)

I do feel well, good, happy and even though some tasks are harder for me I always find a way to figure it out. Executive function is hard. I know that for sure. For example, when I opened up my laptop to start this blog I couldn't figure out how to start a NEW blog! I couldn't remember which button/ icon to click on. Thankfully I finally figured it out. That's just one example but I think you get what I'm trying to say. I am good, I'm happy but I still struggle at times which is totally understandable and expected!

The following week was pretty boring. Hair cut, another neurology appointment with Dr. Sachdeva in Danville. She too said I was doing great and to keep it going! I got my annual teeth cleaning and was I happy about that, especially since five days later we were all on lock down due to COVID-19.

So that brings me to our current situation. This is not fun. This is not helpful for me and my brain. I am a HUGE extravert. I LOVE people, I love to talk and connect and spend time with my friends and family. This social distancing is not helping me at all. Thankfully I don't have any anxiety about it but I definitely spend most of my day trying to keep busy and keep my spirits up. Journaling, praying, meditating, yoga classes, dance classes, snuggle time with Rusty and knitting while listening to my Audible books.

Photo from our walk!

Bob is home and that part is nice but he's probably going a little crazy too. He's been keeping busy and thankfully he's picked up a new hobby and has been cooking for us! All plant based, gluten free and all delicious. Walking in the neighborhood has been fun too but I really just want to stop and TALK to everyone, and hug them and hear their story. This is a tough time for all of us so I will stop my complaining....

I missed Kristen's birthday because of this and that was heartbreaking๐Ÿ˜ข We had dinner plans at one of our favorite restaurants that we had to cancel. And I was hoping to spend time with her this week because Bob was going to be out of town, And I miss Celly too. We did FaceTime with her and Ryan, and we sang to her and let her virtually blow out the candles on a small piece of cake. But of course it''s not even close to what I wanted for her. My baby is 37 years old but she still loves her mom and I know she could use a hug right now๐Ÿ’œ

Time will tell how much longer we will be in this situation. As I said I am making the most of it. I'm not scared or fearful, I'm just missing the connection with others. I will continue to follow the rules and do my best to cope like the rest of you. The only one happy seems to be Rusty! He is thrilled to have me acournd and spends most of his time sleeping right by my side.

Later this week we will be back at UCSF for another infusion and I know their protocol will be much different than it was a month ago. It will be good to see everyone and I promise to post a picture of my new shoes ๐Ÿ˜‰

Sending love and prayers to all of you around the country and the world who are in the same situation. We will survive this and if we all stay home we will hopefully minimize the incidents and deaths. 'Faith not Fear' has always been my motto๐Ÿ™

Hang in there and please reach out if you feel like talking!

Friday, March 20, 2020

Lock down - Week 1

Hi everyone! I’m trying  something new today! One of my friends who is also living with Younger Onset Alzheimer’s turned me on to  Day One Journal. (Thanks Kelly). 

As many of you know I’ve been journaling every day since I got my diagnosis. Those journals have been personal and I’ve used pen and paper. Today I thought I would try this app and use it for one of my blogs! It will be an experiment so please excuse any errors. I can’t share it but I can copy and paste - hopefully I will be able to add it my Blogger account  I guess it worked !

Yesterday turned out to be a lovely day. Even with being on ‘lock down’ due to the Coronavirus ๐Ÿ˜ข Today is day 4 of this very scary time.  I am getting a little stir crazy and thankfully I finally had a reason to  drive  my car for the first time this week! We ordered lunch from one of our favorite locally owned restaurants and it was delivered curb side. No touching and definitely 6’ apart. 

Sideboard does a great job and uses organic ingredients so please check them out if you’re in the neighborhood. Their deserts are pretty amazing too!

Lunch was great and then I decided to listen to my book and knit. It’s actually not a great book but I’m almost finished with it so I will see how it ends. I only listen to books now using Audible. When I READ a book I have a hard time remembering and for some reason having someone read to me is easier. Plus it allows me to listen while I’m knitting and / resting with my kitty ๐Ÿˆ 

The sun was shining too and I walked around our beautiful country club, took photos and waved at my neighbors. Keeping 6’ away is difficult for me. I’m very affectionate and love people and love to hug my friends and family. This is a tough time for everyone so I won’t complain. I am not sick, my family and kids aren’t sick and we are surrounded by people who would be happy to help us if we needed it. I guess that’s all that matters right now. 

Having Bob home all week has been fun and he’s been doing all the cooking too. He started a plant based diet about a month ago. Since then he decided cooking should be his new hobby! That certainly works well for me๐Ÿคฃ I will eat almost anything that’s healthy and so far everything has been amazing. 

Today for breakfast we had vegan pancakes with cinnamon . No syrup but that’s ok. They are delicious, probably because they’re made with plantains. For dinner last night we had gluten free pasta with pesto and organic chicken. He also has an amazing recipe for crab cakes made with hearts of palm! So yummy ๐Ÿ˜‹ 

Since this is my first journal entry I will keep it short. Yesterday I was very active and happy and doing my best to entertain everyone on social media. Today I’ve already done yoga and have plans to try and finish my Alice’s Embrace wrap and finish this stupid book so I can find something better. Any suggestions?? Remember that it needs to be available on Audible!! It’s a gorgeous day again so Bob and I will take a walk and enjoy the fresh air. 

That’s it for today! I hope this app works out for me. It sure is easy to use and typing on my cell phone is very comfortable for me. 

Stay safe, stay at home and please wash your hands and take care of yourself and your family. Movie night and binge watching TV seems to make the days go faster. 

Thanks for all your support๐Ÿ™๐Ÿป Rusty says hi too๐Ÿ’œ

Monday, February 24, 2020

February Update ❤

Wow, February certainly flew by! It was another great month and the only downer is that we aren't getting enough rain and the flowers and trees seem to think it's spring time. Global warming is real and it is scary. I'm not an expert on the topic so I will just leave it at that. 

My shoulder continues to be a pain - literally a pain - but the physical therapy has helped me get more range of motion. Eric is my physical therapist and he makes the treatments as enjoyable as he can. I'm so thankful their office is in San Ramon. Icing it at night really helps and I'm hoping that some day I will be able to raise my left arm above my head again!

Bob and I had a wonderful day in Sacramento earlier this month. It was the Alzheimer's Association Advocacy Day! Thankfully we were able to drive up the night before and enjoyed a nice dinner near the hotel. The event started around 9am and if we would have driven from our house in the morning it would have been a very early wake up. I don't do well when I don't get enough sleep and Bob knows that so he kindly always gets us a room the night before for these early events.

There were over 250 people at the event and we saw many of our dear friends from around the State. Bob's college buddy and my friend Assembly Member Cecilia Aguiar-Curry, along with Assembly Member Monique Limon introduced Assembly Bill 2047, and Assembly Bill 2048.These two bills would promote greater awareness and earlier diagnosis of Alzheimer's and dementia! We were so happy to be there for them, to thank them for their support and to spend some quality time with Cecilia and other advocates from around the state.

Two days later we were on our way to Reno to help celebrate our grandson Benjamin's 3rd birthday! We decided to fly this time and that was definitely a good choice. The flight time from Oakland was only 29 minutes! Our visit was short but fun and we always love spending time with family. I was able to rest during the day which is something I do most days no matter where I am.

The following week we spent the night in San Francisco so we could attend another meeting with the Governor's Task Force. Former Secretary of State George Schultz was there along with many volunteers and some of the other task force members. I met Dr. Dean Ornish who works at UCSF. He has a  practice that focuses on Alzheimer's disease. I think his plan includes lifestyle, eating well and exercise programs. When they contacted me to make an appointment they told me that I would need to be at UCSF three times a week! That is definitely not something I could do, nor do I want to do that. I'm sure his protocol is helpful but I feel good most days and am continuing to live well, eat well and surround myself with people who lift me up.

Later in the month I had lunch with one of my high school buddies and we laughed and laughed and had a great time! I always enjoy my lunch dates. I have another high school friend coming to visit this Friday! Yeah, two lunch dates in the same month. Lucky me๐Ÿ˜ƒ

Saturday I had an amazing and uplifting time at Oprah's 2020 Vision Tour in San Francisco at the Chase Center. Kristen and I went together and it was so inspiring, uplifting, emotional and FUN. We meditated, we danced and we wrote our intentions in our workbooks. We made a commitment to maintain a balanced lifestyle and to share our commitments with others so we could be accountable. 

I had no idea what to expect at this event. I was just thrilled to be in the same space with Oprah! Little did we know that we were only 8 rows back from the stage. She was literally standing right in front of us! There were over 15,000 people there and it was fabulous to feel the love and feel the energy in the room.  She reminded us that even during the greatest storms in our life, all is well, we are well. And she challenged us to be powerful beyond measure! There were so many great nuggets. There were tears and profound feelings of joy. Being there with Kristen made it special and so personal and we both walked away filled up and looking forward to making changes in our life and in our behaviors. I really liked this quote "You are here. You are exactly where you are supposed to be. Live in the moment and enjoy what you have๐Ÿ’œ"

This February has been amazing so far and even though I've had plenty of days that are pretty boring, I still make the most of them. I hope all of you had a good month too. And that you enjoyed your Valentine's Day and time with your family. This week I am looking forward to an event in San Carlos with my dear Alzheimer's Assoc buddy, Claire Day! We will doing a 'fire side chat' event at a pharma company who is working on research for AD. I can't wait to see Claire and to share my story with them. And to thank them for their research in helping us to find a cure. I will let you know how it went in my next blog ๐Ÿ˜Š

Enjoy your day, enjoy your family, friends and work colleagues. Life is short and I hope every day you find joy and peace and love within yourself!

Thank you for all your prayers and support. I started my 2020 Alzheimer's Walk page but will be asking for donations as the year progresses. With your help maybe I can beat my 2019 individual fundraising number of $21,640๐Ÿ’ฐ

God bless you all! I hope you have a great week and can avoid all the negative noise about our upcoming election.... 


Friday, January 31, 2020

It's 2020! Bring it on ๐Ÿ’ช

It's Friday and its such a gorgeous day here in Danville! It's hard to believe how fast this month has flown by. It's been another crazy busy month and if I didn't have my calendar to remind me of all the things we did there would be no way for my brain to remember them!

My last blog was at the end of the year and it was fun to look back and see all the amazing events and activities from 2019. I have a feeling 2020 will be just as remarkable and challenging. Let's hope so!

I'm thankful for the Alzheimer's Assoc and their support and for my weekly support group in their office. I'm thankful for the opportunities they've given me to use my voice and share my story. It's hard to keep going every day and keep a smile on my face, but knowing that I'm helping others brings me strength and my family always makes sure I'm ok and not doing too much๐Ÿ’œ

We had a really fun Christmas season this year and I haven't mentioned it so I wanted to make sure it got into my blog. Which also means it gets into my long term memory! 

We spent some holiday fun with Phil, Elizabeth, Jonny, Phil and Ben up in Sparks a few days after Christmas. It was a wonderful weekend and even though it was really cold we had a blast. Benjamin is so smart and so fun and I'm grateful we were able to get up there. On our way home we stopped at my brother Bob's house in Auburn. Jonny came with us and we had lunch with him and Carol. I was so happy to see them, their kitties and to finally see their new house.  

We were able to spent Christmas Eve and Christmas Day with Ryan and Kristen, and Celly too of course. Ryan's mom & dad hosted Christmas Eve at their house with all of their family. It was a little overwhelming for me but everyone was very nice and the food was fabulous. Christmas morning we exchanged gifts and took some fun pictures! 
Celly was very happy to be part of the celebration! Bob and I went home after that and spent the rest of the day together. We opened our gifts and enjoyed the peace and quiet. Family time is great but so is time alone and some good snuggles with Rusty on the couch๐Ÿฑ

Earlier this month we had the pleasure of attending my cousin Jim Bonde's wedding. He and his beautiful bride Kathy were married at Grace Cathedral in San Francisco. That venue was special, especially since Jim's mom, my Aunt Susie got married there many many years ago! It was so great to see everyone. Especially my Aunt Nancy! She's 92 years old, definitely has dementia but she knew me and all the rest of our family. She remembered Bob too! Time with her was a gift and I hope to see her the next time we're in Fresno. Family is EVERYTHING๐Ÿ’—
Geary - Bonde -Barry family minus Bob :( 

I've had two infusions this month too. First one was Jan 6th and the second one was just a few days ago, Jan 27th. Both of them went well. They were able to find my vein but it did take a few tries. All the nurses are so nice and they do the best they can to make the experience pain free. I made cookies for everyone again. This time I made chocolate chip! They were very delicious and I'm glad to bring them snacks. They are all so kind and make these clinical trials almost pleasant!

Had a great lunch with two of my Intel buddies - JeanAnn and Melaine. We had a great time and a fabulous lunch at True Food Kitchen. I just love my lunch dates! Thank you ladies ๐Ÿ˜ A few weeks later I had another date with my good buddy Rebecca. Time out and about with my friends always lifts me up and I am so thankful for all of your continued friendships. 

I spent a few days in SLO with Bob and that was fun. Getting there was a real pain thanks to travel delays but I survived. I made the most of being alone at SFO and watched some quality TV on my iPad, aka Grey's Anatomy๐Ÿ˜Š I'm thankful that I can still travel alone and navigate the airports without any stress. 

Next week Bob and I will be in Sacramento for our State Advocacy Day. I'm looking forward to that and I'm sure we will be posting photos and sending updates via twitter. We will be home for the Super Bowl this Sunday and that's just fine with me. I enjoy the comfort of our home and can't really handle crowds anymore. Go 9ers๐Ÿˆ๐Ÿˆ!!!

So that's my update this month. I hope you all had a great January and that you continue to surround yourself with friends and family. Love and blessings to all of you, thank you for your prayers, support and here's to an amazing 2020๐Ÿ’œ๐Ÿ™๐Ÿ’ฅ

Tuesday, December 31, 2019

Bring on the new year ๐ŸŽ‰

Happy New Years Eve! Do you have plans? Are you going to a party or just laying low at home with friends? Bob and I have traditionally stayed  home and cooked a nice dinner and toasted each other with wine or champagne and watched a fun movie. I don’t really like being out on New Years. I’m afraid of the drivers and honestly there is no place more comfortable and calming place for me than my own house.

I like the fact that I can be in my PJ’s and hang out with Rusty and Bob and whoever else wants to stop by. I don’t need a fancy event - although I do LOVE to dance! One year we put on some music and I danced by myself  for a while. I’m sure Bob was entertained and I definitely had fun. I’m also still struggling with my shoulder pain / frozen shoulder and having ice on it really helps. It’s hard to do that when you’re out in public. Good news is I’m back in physical therapy and will also be getting another cortisone shot soon. My goal is no pain and full range of motion. Most importantly I want to be able to practice yoga ๐Ÿง˜๐Ÿป‍♀️ I miss it very much and have been doing my best to stay active - even if that means just walking around the neighborhood.

Since this is the last day of the year I thought I would jot down some thoughts / highlights of 2019. I cannot do this from memory but thankfully I have my calendar handy. These blogs help me go back in time and since my memory is failing, having a place to save all my thoughts and activities is helpful. So here we go - highlights from 2019 (in my opinion)๐Ÿ˜

#1 - Kristen & Ryan’s wedding! It was a magical and beautiful day for me. I’m so thankful we have video and a ton of photos available so that I will never forget. The love was overflowing that day and I was so honored and grateful to have our family and friends there too. I couldn’t be happier for my daughter and son in law❤️

#2 - Sharing my journey of living with Alzheimer’s. I love speaking and using my voice to educate and to help remove the stigma of this disease. This year I had several opportunities to do so. Each one was special, rewarding and hopefully inspiring. Speaking at the Leadership summit in San Antonio was very special and my time in Chicago at the Power of Purple, sharing the stage with Dr Maria Carillo was a dream come true. Spending time with Maria Shriver at Move For Minds and sharing my journey with them was also really fun. I also really enjoyed my live interview with Being Patient’s founder Deborah Kan. All of these events keep me sharp and allow me to continue to use my brain. 

#3 - There are several fun trips we took this year but here are a few I really enjoyed. 1-Kristen’s Bachelorette in Scottsdale. 2-Bob’s birthday weekend in Santa Cruz. 3-Eagles concerns in Vegas with my brother and sister in law. 4-Maui trip with Monica & Michael. 5-Green Bay Packers football game. Definitely a  bucket list item for Bob. 6-Washington DC AIM Advocacy event. Best part was the dinner cruise the night we arrived. Unfortunately I got sick a few days later and missed the visits to Capital Hill.  7-Our annual Maui vacation with some extended time on Lanai. The cat sanctuary was a blast and every minute in the ocean and laying by the beach was incredible. Definitely one of my favorite places to travel to. 

#4 - Serving on the National Alzheimer’s Association National Board of Directors. It’s hard to explain my feelings about this position that I was so honored to receive. The caliber of people I met, the kindness, the relentless determination and so much caring and concern for me and all of us living with Alzheimer’s and other dementias. I learned so much and was able to use my voice. I was able to share my stories and my experiences and to also remind them how important the organization is to our family, and to all the people around the world living with AD and other dementia.

#5 - Lunch dates and quality time with my friends and family. I’m so thankful that I still get my Intel fix when I can chat and hear all about the industry and what’s new. I’m thankful for the continued friendships and for the texts and Facebook support I get from my buddies. I may be gone, but thankfully I am not forgotten. Working at Intel was enormously stressful and demanding but I wouldn’t change it for anything! I still ‘bleed blue’ and I hope next year my friends will keep on calling and texting and eating amazing meals with me! The same holds true for all my high school friends, my sister, my daughter and anyone else who wants to hang out with me! I’m available most days so let’s have some fun next year๐Ÿ˜„

#6 - I can still drive! I probably should move this to the top of my list because without a drivers license I would not be as happy as I am right now and I certainly wouldn’t be able to have lunch dates and driving myself wherever I wanted to go. I relish the freedom and I know i won’t have it forever. I do not take it for granted. I am very aware that this will most likely be my last year driving. I’m ok with that. I’m living in the moment and am grateful for Uber and Lyft so that when the time comes I know I won’t be stuck in the house depressed and lonely. 

#7 - One of my favorite events of the year is our annual Alzheimer’s Assoc Walk! This year the event was in San Ramon and I started fund raising very early. I extremely competitive and I do my best each year to be one of the top fund raisers. We raised over $35,000 and I am so thankful to all of you for helping us find a cure. I personally raised $20,000 and am the 2nd highest fundraiser behind the amazing Jim Voorhees who raised $31,000. Thank you to all of you for your support. For joining our team and walking. For dressing up and having fun on walk day and for joining us for lunch afterwards. I can’t wait for next year๐Ÿ’œ

So it's time for my lunch date and I want to post this even though I am not finished with my highlights. I will do my best to continue the highlights either tomorrow in 2020, or very soon. Writing this has taken over 2 hours today! I started in bed a long time ago and now it's almost noon. Thankful for your support and for understanding that I am living very well with AD but holy cow, there are some issues that I really wish would go away. More on that later.

Have a fabulous and blessed, fun New Years Eve! Be safe and spend time with people you love. And most importantly, make sure to 'do what makes you happy'.  That's what life is all about.

God bless you all and thank you for your continued support and prayers.  Please forgive the typo's and bad grammar.  ๐Ÿ˜๐Ÿ™

Monday, December 16, 2019

Mahalo ๐ŸŒบ

 I’m sitting on our lanai on Maui enjoying the crashing waves, the beautiful palm trees and the sounds of children giggling and having fun. It’s our last full day here and as always, we’ve had a fabulous time. I’ve been coming here for years thanks to my dad who sold me his timeshare at Papakea in the late 90’s. It’s not fancy but its perfect for us. Being on the island gives Bob a chance to really unwind and relax. The ocean is healing and soothing and we appreciate every day over here. I also usually find a kitty friend to pet and play with while I’m here. This year we found a girl kitty. I named her Lucy and she’s
Lucy kitty
so sweet.

This year we were able to celebrate our anniversary on Lanai at the Four Seasons. We got married there and it’s a very special place for us. The condo is great but when we’re on Lanai we are pampered and are able to enjoy amazing meals and really relax. This year we also visited the cat sanctuary! I had been there earlier this year with my girlfriend and her husband but it was Bobs first time. The kitties did not disappoint! They were all over me and I was in heaven. Bob did a great job taking pictures too and I’m thankful to have them forever.  

We also had a private tour of the new Four Seasons Lodge. It’s been going through some serious remodeling and is not yet open to the public. The grounds are unbelievable. The property is definitely more of a retreat or a place to reconnect with yourself. It’s very exclusive now and I’m sure it’s extremely expensive. They have several yoga studios and these amazing 100 degree dipping pools that are in very private locations. While we were walking the grounds we ran into Larry Ellison who just happens to own 98% of Lanai! We hope to come back next year and spend a few days in heaven if possible. 

The six course meal we had following the tour was off the charts! I can’t even try to explain how delicious it was. My biggest regret is I didn’t take any pictures of the food! It was a special evening and one we will never forget. 

We also had a nice visit with my niece Mindy and her husband and their two adorable kids while we were here. It was nice to have a chance to color and love on them and get my ‘baby’ fix - even though neither of them are babies ๐Ÿ˜‚

We are in restaurant heaven and have eaten at Star Noodle twice. Had a beautiful and delicious dinner at The Montage. Enjoyed some Thai food at the food trucks down the street from our place. We started this food frenzy with the most amazing poke bowl I’ve ever had at the Ritz Carlton at Kapalua. Tonight we will end our trip with dinner at Girard’s in Lahaina. 

A few days before our trip I had another infusion for the Eli Lilly clinical trial and a full day of cognitive testing. It was rough but I made it through ok. It was pouring rain when we left and the drive home took us almost four hours. My buddy Steve was there too and his trip back to Modesto was just as bad. I am happy to be part of the cure and to help us find the right science to cure this darn disease but it really is a huge commitment and extremely taxing on my body at times. Thankfully the staff and physician assistants and all the nurses do their best to keep my smiling. 

Our plan was to leave the following day to drive up to Angels Camp for Thanksgiving but that didn’t happen. It was too dangerous and there was too much snow on the roads. So as usual, we made the most of it! Bob and I made a delicious turkey dinner including stuffing, mashed potatoes, yams and green beans! We turned those lemons into lemonade ๐Ÿ˜ It was a little sad not to see any of our family but we made the most of it. 

So that’s my November / December update! The next big challenge for me is getting my frozen shoulder healed so that I can actually use my left arm! It was injured back in August and I’m finally scheduled for a cortisone shot and some serious physical therapy when we return. The pain is constant and thank goodness for ice packs and Advil. 

I hope you all had a great Thanksgiving and will be surrounded by love on the upcoming holidays. We’ve had a great vacation but I think Rusty is missing me and it’s time to come home ๐Ÿˆ Many thanks to Sylvia and our neighbor Dennis for taking good care of him!

Love and blessings to all of you and I hope you will be surrounded by family and friends for the Christmas season๐ŸŽ„ God bless you and thank you for your support ๐Ÿ™๐Ÿป

Wednesday, November 13, 2019

‘‘Tis the season” ๐ŸŽƒ๐Ÿฆƒ๐ŸŽ…

It’s one of those beautiful fall days here in the East Bay! The sun is shining and I’m sitting in my back patio soaking up some vitamins D and watching the ladies play golf this morning. The leaves on the trees have turned and I am enjoying the warmth of the sun and the peaceful chirping of the birds.

Kristen is here for a few days while Bob is traveling and working hard in SLO. I love having her here and we always have such a good time together. We saw a movie yesterday and then watched 'The Voice' for a few hours. That’s not Bobs favorite show so it’s nice to binge watch when he’s traveling ๐Ÿ˜

Last week I was actually able to travel with Bob down to Fresno. I haven’t done that in a long time and I was happy to spend time there, and have the chance to meet some of his work friends.  I have family there too. I was born there and went to grammar school for a few years before we finally ended up in Modesto. I was very young when we lived there but I do remember some of the landmarks around town, especially in the Tower district.

I was able to have lunch with my cousin Lauren and later that day spent some time with my cousin Meg Geary Hoff’s son, Kyle. I guess Kyle is my second cousin... I’m not sure how that works. Anyway, I had a great visit with everyone and especially enjoyed Kyle & his wife Amanda’s new puppy Luna! She was the cutest little thing. Their sweet daughter Berkley and I played together too and she read some books to me which was really special๐Ÿ’ž She is such a sweet child.

The sad part of my visit to Fresno was that I couldn't see my 92 year old Aunt Nancy, Kyle's grandma! She's in a senior living environment and their entire wing was on quarantine due to illness. No one could go in or out of the building. I was pretty upset but realized it was out of my control. Expectations can lead to disappointment so I try not to get my hopes up, but I definitely was sad I couldn't see her. 


The other big event that happened two weeks ago was our East Bay Alzheimer's Walk! I have been raising money most of the year and doing what I could to raise awareness and ask my friends and family to walk with us. We had a great crowd and a huge walk team! Thank you to all of you who donated and who were able to walk with us. I was holding the blue flower again this year with four of my friends who are also living with the disease. It was pretty powerful and emotional. No surprise there! We hosted lunch afterwards and at this point have raised over $34,000!

A week after our Alzheimer's Walk we traveled down to Los Angeles to speak and particpate in Maria's Shriver's fundraising event, Move For Minds. We've been attending this event for several years and it's always inspiring and encouraging. My good friend Teresa Valko was there too with two of her friends and we all had a great day.

The next day I was at the Orthodontist getting my new Invisoline Braces! Yikes, I've never needed or had braces in my life but my teeth have shifted so here I am at 64 years young with my first set! I've been doing well with them so far and they definitely have stopped me from snacking! I need to wear them 20 to 22 hours a day! 

On top of that, the next day I was UCSF for Infusion #6 for the Eli Lilly Tau clinical trial. I can honestly say these past few weeks have been the busiest I've had in a long time. Thankfully I have this entire week to rest, relax and enjoy this gorgeous weather we're having.

So that's what's been happening in my life, our lives. I am grateful every day for all your support, prayers and for my continued good health. I have lunch later this week with my sister and bestie Andi and next week Bob and I will be in Sacramento for our first meeting of the Governor's Alzheimer's Preparedness Task Force. I am so grateful for the opportunity to stay involved, especially considering that my term on the National Alzheimer's Assoc BOD has ended. My goal is to do the best I can and to use my brain and my voice every single day to raise awareness, funding and support to #ENDALZ๐Ÿ’œ 

I hope you all have a fabulous Thanksgiving holiday with your friends and family. This year we will be in Twain Harte with Bob's sisters and family and hopefully a few doggies ๐Ÿ˜ƒ