I fight for a cure for me & our amazing children❤️

Thursday, July 20, 2023

It's a good day!

Happy Thursday everyone! I haven't blogged for a while so I thought today might work for me. One of the reasons I wanted to blog was to share some good news for me/us and our family๐Ÿ’œ

Yesterday was my annual check up with my neurologist! Her name is Dr Sachdeva and she has been my doctor since my diagnosis in 2016. She also was very instrumental in helping me get involved with the clinical trials at UCSF. 

Bob and I went together which is very important for someone who has AD. It's never good to go alone because half of the time you won't remember what the doctor said! I tried to remember what the date was and the year and was hoping and praying she wouldn't ask me to start backwards and subtract by 6 and all the way to 50. But she didn't ask me any of that and she didn't give me the MOCA test either which I think is a test to see how people are progressing.

It was a wonderful visit and Bob shared that I'm doing well and my biggest issue is I have very short term memory which is pretty normal.  She was very happy to hear that I can drive and do all the tasks in our house. Such at cooking, cleaning, buying groceries etc.

My next step is a sleep study to see if I'm getting the right amount of sleep! I am tired most days so I'm curious to see what the Sleep Study will tell us.

On another note our grandbabies turned one on July 10th! They are both walking but Izzy is definitely not as fast as Tommy. They are so wonderful, and I love every second of my time with them. My shoulder is getting better too and I will give big praise to all the physical therapists out there! I can almost put my arm behind my back now! That's great progress.๐Ÿ’ช  

Our next adventure is spending time up in Chico with Jonny and the rest of the Linscheids. I love staying with Carol and hanging out with her doggy Ellie ๐Ÿ• They have a pool so I'm pretty excited about swimming too.

I was hooked to the TV and tennis for several weeks and was happy to see that Carlos Alcarez won the Men's tournament over Djokovich. I watched ever match and in awe of their strength and tenacity! I was hoping Jabeur would win the women's but she still played an awesome game๐ŸŽพ

So I guess that's my update. Many thanks to my friends and family who drive me back and forth to see the twins each week. I am so thankful for your support. I don't mind taking UBER but it's more fun to be with my friends.

I hope you all have a great rest of your week and please text, call or whatever if you want to talk ๐Ÿ’–

PS! Bob & I went to the Giants game and had a blast๐Ÿ’ฅ 

Friday, April 21, 2023

Spring has sprung๐ŸŒธ๐ŸŒบ

Happy Friday to all of you! It’s been a while since I’ve blogged but today seemed to be a good day for me to let you know what’s going on with me. 

I haven’t been in the mood to blog or to do much of anything. I’m still doing my meditation and Bible plans in  the morning with my espresso ☕️ And I like sitting outside! The birds bring me joy when the weather cooperates ๐Ÿฆ 

I’m still able to help Kristen with the babies and I love every minute of that. Unfortunately I injured my shoulder so I’m in a lot of pain and dealing with physical therapy every week. I can still hold the babies and play with them and feed them which is very gratifying! They are so darn cute and I love them to pieces ๐Ÿฅฐ

The big issue for me know is exhaustion and the lack of motivation. The headaches and ringing in my ears are getting worse. Most days I need to lay down and rest. I do have an appointment at UCSF soon and hope to see how my brain is functioning and what’s next. I’m hoping to get in another clinical trial too! I will let you know how that goes. 

Some days I stay home and rest but most days I force myself out for a walk and/or a lunch date with friends. Last week Bob and I were up in Chico and I was able to spend time with two of my dear friends - Michelle & Maria. We had SO much fun together when we were living there and it was the highlight of our trip. 

I did get to celebrate my birthday in Chico and I was so happy to share it with Carol! We have the same birthdays and enjoyed a lovely meal with Bob & Caitlin & Jonny ๐ŸŽ‚ And I got to play with Carols dog Ellie! She likes to wake me up in the morning too ๐Ÿคฃ

I’m still listening to audible while I rest and really enjoyed ‘Hello Beautiful’ by Ann Napolitano. ‘Spare’ by Prince Harry was good too! Right now I’m reading ‘Little Fires Everywhere’ by Celeste Ng. I’ve read it before but it was a very long time ago. 

So that’s my update for now! I will try to post some photos too. But sometimes my brain can’t handle that…. We’ll see how it goes today ๐Ÿ˜„

I appreciate all your support and I especially loved all the birthday wishes ๐Ÿ’• It’s very hard to believe that I’m 68 years old now. YIKES ๐Ÿ˜ณ 

Love & hugs and blessing to all of you my friends and family❤️

Wednesday, January 11, 2023

Slowing down ๐Ÿ˜’

Greetings to all of you and Happy New Year๐ŸฅณI haven’t blogged for quite a while so I decided today might be a good day to update everyone. It’s cold & rainy and I think staying home is best for me today. 

I’m doing ok - just ok. Not great but not terrible. My short term memory is non existent and I really cannot remember conversations!! It’s so frustrating but I’m trying my best to stay positive. 

Any time I talk to someone I write down what we talked about so I can let Bob know or Kristen or my friends what happened or what I needed to do that day. 

I tried my best to get gifts for Christmas too but I screwed that up ๐Ÿ˜ข I’m thankful that everyone in our family understands how losing my short term memory is extremely annoying and I feel bad that I have to ask them the same questions day after day. 

On a happy note the twins are perfect and I love every minute with them. They are six months old now!! Kristen is back at work and has a nanny to help her but I’m still able to spend time with them once a week. And this weekend I’m able to spend the night and get a lot of quality Buni time with the babies ๐Ÿ’•๐Ÿ’™

After Christmas Bob and I went to Chico to see Jonny and the rest of the Linscheid family. I hadn’t been up there for at least three years. It was a wonderful visit and Bob and I went to our favorite church - Bidwell Press๐Ÿ™๐Ÿผ

I know we did a lot of other things since my last blog but I think I’ve already mentioned most of them. As I’m writing this Rusty is sitting on my lap sound asleep๐Ÿˆ I can’t imagine not having him with me and I always miss him when we’re out of town. 

Oh wow I almost forgot the best part of the past few months! Bob and I went to Maui๐Ÿฌ๐ŸŒŠ I flew there alone and a week later Bob came over. I was so happy that I didn’t need any help and spent the first week without any issues or concerns. Other than the horrific wind storms that knocked down some the of palm frongs. I took a ton of beautiful photos and got to spend time with my neice Mindy and her family too. 

We celebrated our Anniversary on Lani - which is where we got married ๐Ÿ’’ It was so wonderful to be back there. The food and the service and the views are worth every penny. We also went to the Cat Sanctuary which is one of my favorite outings. 

So I guess that’s all I can remember. I know I’ve done more fun stuff but my brain can’t remember it right now. 

Please keep the texts and calls and lunch dates coming! I miss my friends & family and can’t wait for the next excuse to have a big party ๐ŸŽ‰