I fight for a cure for me & our amazing children❤️

Sunday, May 5, 2024

Beautiful Day to Blog 💜

Hi everyone! It's been a while since I've shared my adventures with you. I'm doing ok - some days are better than others. I still have constant headaches and ringing in my ears! It's really annoying but I do the best I can. 

My doctor recommended a CPAP device and it's not too bad. It definitely doesn't relieve my headaches, but I will continue with it and maybe it will get better as time goes on. 

I'm so happy I can spend time with the twins (Tommy & Izzy), and I love every minute with them! They are getting so big and starting to talk a little bit. I am still taking UBER over to Kristen's house and that works well for me and our family.

I'm so glad I have friends nearby and especially grateful for Debbie! We've been friends for many years, and she lives near our house so it's easy to take walks and have lunch when it fits with her schedule. A few days ago we went shopping in Walnut Creek! What a fun day that was 😀 Thanks to Jane, Maya and Ondine too for taking the time out their schedule to have lunch with me! 

My brother and sister in law came down to visit us a few weeks ago. They live in Auburn and it was so nice to spend time with my cousins! We had so much fun!!  

My brother is also getting the FDA approved drug, Lequmbi.  So far my sister is still ok! 

I've had two sessions of the drug I mentioned above. Bob has come with me both times but going forward we're going to get someone else help occasionally. Bob is super busy with work and we are hoping to find someone who will pick me up and get me to UCSF for some of my sessions. We are working on that now.

I had one MRI a few weeks ago and I survived that!  Thank goodness for Adavan or whatever the drug was they gave me!

So, I think that's about all I can remember I've done it the last few weeks. I'm still addicted to tennis and to Grey's Anatomy. Oh- I did want to mention how grateful I am for my Intel buddy Mike Ursini! He frequently reaches out to make sure I'm doing ok. How sweet is that!!

I almost forgot to talk about how awesome Rusty is! He sleeps in my bed with me and when I'm resting, he sleeps on my lap! He's the best kitty ever! 🐈

And last, but definitely not least! This amazing husband of mine keeps me going and I honestly don't know how I could survive without him! 

Thank you, husband, for all that you do for me and our family and for cooking for us and for making all of our special meals 💘