I fight for a cure for me & our amazing children❤️

Thursday, July 20, 2023

It's a good day!

Happy Thursday everyone! I haven't blogged for a while so I thought today might work for me. One of the reasons I wanted to blog was to share some good news for me/us and our family💜

Yesterday was my annual check up with my neurologist! Her name is Dr Sachdeva and she has been my doctor since my diagnosis in 2016. She also was very instrumental in helping me get involved with the clinical trials at UCSF. 

Bob and I went together which is very important for someone who has AD. It's never good to go alone because half of the time you won't remember what the doctor said! I tried to remember what the date was and the year and was hoping and praying she wouldn't ask me to start backwards and subtract by 6 and all the way to 50. But she didn't ask me any of that and she didn't give me the MOCA test either which I think is a test to see how people are progressing.

It was a wonderful visit and Bob shared that I'm doing well and my biggest issue is I have very short term memory which is pretty normal.  She was very happy to hear that I can drive and do all the tasks in our house. Such at cooking, cleaning, buying groceries etc.

My next step is a sleep study to see if I'm getting the right amount of sleep! I am tired most days so I'm curious to see what the Sleep Study will tell us.

On another note our grandbabies turned one on July 10th! They are both walking but Izzy is definitely not as fast as Tommy. They are so wonderful, and I love every second of my time with them. My shoulder is getting better too and I will give big praise to all the physical therapists out there! I can almost put my arm behind my back now! That's great progress.💪  

Our next adventure is spending time up in Chico with Jonny and the rest of the Linscheids. I love staying with Carol and hanging out with her doggy Ellie 🐕 They have a pool so I'm pretty excited about swimming too.

I was hooked to the TV and tennis for several weeks and was happy to see that Carlos Alcarez won the Men's tournament over Djokovich. I watched ever match and in awe of their strength and tenacity! I was hoping Jabeur would win the women's but she still played an awesome game🎾

So I guess that's my update. Many thanks to my friends and family who drive me back and forth to see the twins each week. I am so thankful for your support. I don't mind taking UBER but it's more fun to be with my friends.

I hope you all have a great rest of your week and please text, call or whatever if you want to talk 💖

PS! Bob & I went to the Giants game and had a blast💥