I fight for a cure for me & our amazing children❤️

Monday, August 8, 2022

The Joy of Family ๐Ÿ’•

BLOG #119! It's been quite a while since I blogged. My last blog was extremely difficult. Thankfully my dear friend Debbie came over and helped out! I'm hoping and praying that this one will be easier to navigate. It's been almost two months since my last blog so i will try to update you on all my activities❤ 

I am still listening to books and sometimes I can paint at the same time! This month I've read/listened to six books and I am enjoying most of them. One of my favorites was 'The Maid' by Nita Prose. My Intel buddy JeanAnn recommended it. I've had some lunch dates too but they aren't as frequent than they used to be. I think the summer months and kids home for school have something to do with that. I did have lunch with Rebecca at True Food Kitchen and that was wonderful! Oh, and Debbie and I had lunch too which was a real treat. 

I had to say goodbye to my Intel buddy Melaine ๐Ÿ˜ถ JeanAnn and I had lunch with her and a few days later she left for a new adventure in Colorado. We cried a little but hopefully we can stay in touch via FaceTime/Zoom or by texting. I'm happy for her and maybe someday I will visit her! 

Last month! Bob took me to my annual visit at my Neurologists office. Dr. Sachdeva has been my doctor since my diagnosis in 2016. She was very happy that I was doing well. I told her all about my routine and my mediation, bible plans, yoga, walking etc. The only thing she recommended was to mix things up! Change my routine - walk in the morning vs the afternoon. She doesn't want me to paint every day so I will figure out what my new routine will be soon! 

So, the best thing that happened this month was my youngest daughter delivered two beautiful babies! No photos are allowed but I can tell you those twins are absolutely perfect๐Ÿ‘ถ๐Ÿ‘ถ A boy and a girl!!! I can't tell you how much joy that brought to our family. It also gives me hope and even more purpose to keep fighting and raising money to find a cure to END ALZHEIMER'S!!! My goal is to be able to spend time with them and to make many memories with them!

I was able to be in the hospital when they were born and didn't want to put them down. I am filled with hope and joy and I'm so happy I'm able to help them once a week. Changing diapers and feeding them makes me so happy! Celly loves them too and tries to kiss them when they're getting changed!

I've also started my WALK2ENDALZ fundraising and have raised over $10,000 and our team BUNI's BUDDIES has raised over $17,000! Many thanks to all of you who have already donated. Every penny counts and I am so thankful for your support.

The other exciting event took place in San Diego last week. I was part of a panel speaking at the Alzheimer's Assoc International Conference! There were four of us on stage talking about ALZ and how Lego's helped one woman communicate with Lego bricks! I shared my journey of living with ALZ and also spoke about the importance of using the Lego's to share my frustration with one of my primary care doctors. For that Lego set I turned all the Lego people upside down - signifying that my doctor had his head in the sand! This was the doctor that told me "You don't look like you have Alzheimer's!" 


We were there for 3 days and unfortunately, I had horrific nightmares the morning we were flying home. It stuck with me all day and I was so shaken that when I came home, I stayed in bed all day trying to erase the fear. I mentioned it to my colleague, and she mentioned that sometimes Aricept causes nightmares! When I mentioned it to Bob he said I had frequent nightmares! WOW - I guess I either forgot that or just didn't know it was happening that often.

The next day I was fine and Wednesday afternoon I was with my grandchildren and loved every minute with them. 

So that's what's been going on with me๐Ÿ˜‡ I had a fun lunch date with Rebecca & Julia at Blackhawk Grill. It was really fun and we got to feed the ducks too. 

I read a weird book - 'Things We Do In The Dark' - I definitely do not recommend it! I did LOVE "The Maid" by Nita Prose. JeanAnn recommended it to me and I thoroughly enjoyed it!

Rusty has been a good boy too and he likes to lay with me in the afternoon when I'm resting! Bob has been busy but we've been able to have lunch dates and make a point to go to church on Sundays and then have a nice meal. I spent a ton of time watching Wimbledon too and just LOVE that tournament! 

So I guess that's my latest update! I will try to attach some photos to this but I'm not sure I know how to do that anymore. UGH! I need an assistant to help me with technology now ๐Ÿ˜†๐Ÿ˜†

Many thanks to all of you - I can't tell you how much you lift me up and keep me smiling๐Ÿ’œ๐Ÿ’“๐Ÿ’œ 

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