FAMILY

FAMILY
I fight for a cure for me & our amazing children❤️

Sunday, January 20, 2019

Leadership Summit '19...And so much more....

Hello 2019! We've been pretty busy since New Years Eve so today seemed like a great day to blog and reflect on all the blessings that have come our way.

We started the year at UCSF for an appointment with my neurologist. She's the amazing woman that told me that the most important thing that I could do to help me deal with my diagnosis and potentially delay my progression was to 'do what makes me happy'! That's something I will continue to focus on and I hope others dealing with bad news can do the same thing.

Kristen and Bob were with me and not only did she help with the paperwork for my social security decision, she also told us I was doing well and progressing slowly. She was very happy with me and with all the activities I'm involved with😃 We left there hopeful and grateful for her honesty and support. Thank you Dr. Elahi.

After our appointment I had my 21st infusion as part of the clinical trial. It was a long day but we made the most of it. I tried to sleep (which never works), but I did get some rest. Afterwards I took Uber to Kristen's house and spent some quality time with my grand doggy Celly and my sweet daughter💓


The following week was busy with yoga, workouts, lunch dates and some good laughs with my friends. Having something on my calendar every day really keeps my spirits up and gives me something to look forward to. Thank you Buck & Karen, Melaine and Debbie for making my week so special.

As I mentioned in my last blog I have been going to the gym and really enjoying Grey's Anatomy for the second time around. There are a few moments of recollection in some of the shows, but most of the time its as if I've never seen it before. I love it and I love the distraction on the treadmill. It feels great to be working out and I know I'm getting stronger. Maybe some day I will be able to thank 'Meredith' and 'Derek' and the others for bringing me so much joy.

Bob and I and our friends, Tim & Elaine, had a fantastic time at the Sharks Game on the 12th. The Alzheimer's Assoc sponsored an event and because we were one of the top fund raising Walk teams we were able to attend in the sky box. It was really fun and good to see my buddies from the staff in San Jose. The highlight was that I got to ride the Zamboni before the game! It was fun and exciting to be out there on the ice and to wave to everyone in the stands. Thank you Dagmar for this enjoyable event💜 Oh, and they won which made it even better!

Yesterday I flew home from San Antonio Texas after attending a FANTASTIC Alzheimer's Assoc Leadership Summit! It was my first time attending the event and it was unbelievable! The energy, the passion, the excitement, the stories - I could go on and on.

I was honored to speak and share my story of living well with Alzheimer's, but
the most significant part of my speech focused on the importance of the staff. I used the stage the thank them and to showcase how their caring and commitment to me and my family have made such a difference in our lives. I also spoke to the volunteers to encourage them to extend their reach to ensure that everyone can feel as supported and cared for as we do!


I was overwhelmed with the love and support at this event. I took more selfies and photos and talked to more people than I have at any other event. I felt loved, supported and surrounded by people who really care. I am very thankful for the opportunity and the chance to attend this year. 

As you can see this month has been busy and fun! Next week is more of the same with three more lunch dates and good times with good people. I'm definitely feeling the 'love' and doing what makes me happy! 

Thank you for your support and prayers. I know they are working🙏 God bless you all!


8 comments:

  1. Keep up the good work, Pam and keep smiling! We love you. Nick n Jane

    (Montgomery Heights is the orphanage in Zimbabwe we took Braden to. I don't know why it's my id on here!).

    ReplyDelete
    Replies
    1. I have been sick with bronchitis and a sinus infection for about 6 to 7 weeks now. I have been to the doctors twice and the emergency room. I have been put on three different antibiotics, prednisone, an albuterol inhaler, and I take herbal health remedies foundation OTC cold medications. I am no longer coughing a lot and have terrible coughing fits. Then I sound like someone with emphysema. I will cough until I throw up but the doctors don't really have any new treatments for me, after trying out herbal health remedies foundation now am better. Contact: info@herbalhealthremediesfoundation.com or Website:http://herbalhealthremediesfoundation.com

      Delete
  2. Pam your blog is always inspiring. And if it makes you feel any more with it,. I will tell you that you do more in a day, week or month than most people! Thank you for taking the time and effort to keep us in the loop.

    ReplyDelete
  3. Thank you for your willingness to share your journey, Pam. You are truly an inspiration. I'm elated to have met you & thank you for agreeing to a Selfie. I'm praying for you & sending you light & love every day. You're a warrior & a special person in this fight!! Keep on, keeping on!!

    ReplyDelete
  4. There are many person who like to travel like https://www.shimlapacks.in/shimla-honeymoon-tour-packages-jalandhar in winter. They like to feel the extreme experience for their travel. Some person always want a chance for make fun. There are many places which is perfect for the winters.

    ReplyDelete
  5. Hello friends,
    My names are Lingard Ellis, I was suffering from (Alzheimer,dementia) disease for over 3 years,i was hopeless until one of my friend directed me to a clinic, she said he cures Alzheimer disease and also said he has helped her friend to cure Alzheimer virus, and cure other people from different diseases,I never believed her but after a lot of conversation, i decided to give the Dr Hassan a try, just few days later i contacted him and he told me what to do which i did and he prepared a herbal medicine and sent to me through couriers with prescriptions on how i will take it for a period of 8 weeks, After i finished taking the herbal medicine he told me to go for a test which i also did and when the result came out i was surprised to see that I’m Negative. Big thanks to him. You can also contact him via solutionsherbalclinic@gmail.com or via their website on: http://solutionhealthherbalclinic.com/contact/index.html

    ReplyDelete
  6. I have been sick with bronchitis and a sinus infection for about 6 to 7 weeks now. I have been to the doctors twice and the emergency room. I have been put on three different antibiotics, prednisone, an albuterol inhaler, and I take herbal health remedies foundation OTC cold medications. I am no longer coughing a lot and have terrible coughing fits. Then I sound like someone with emphysema. I will cough until I throw up but the doctors don't really have any new treatments for me, after trying out herbal health remedies foundation now am better. Contact: info@herbalhealthremediesfoundation.com or Website:http://herbalhealthremediesfoundation.com

    ReplyDelete
  7. Hope you are feeling well now, thank you for sharing this post with us.
    cheap airport parking

    ReplyDelete