This weekend I was with my daughter and her fiancé in Novato. It’s been a busy work week for Bob and he’s been out of town, so spending time with them is much better than staying home alone! Especially because I got to be with their sweet doggy Celly. He’s such a sweet boy and I love laying with him and having sloppy ‘good morning’ kisses from him🐕
Last month I was at UCSF for the new Eli Lily clinical trial. Unfortunately I did not quality because I knew what season it was, what day it was and what city I was in!! Very frustrating but the good news is I’m going back at the end of the month to try again😀 I will do my best to forget what day it is and / or what the season is this time! The biggest determination is how much Tau I have in my brain. Those tests will happen in May and I will do my best to update all of you as things unfold. Being part of the solution and potentially the cure is extremely important me so I REALLY want to qualify for this clinical trial. Pray for me please🙏🏻
Yesterday I turned 64! Happy Birthday to me🥳 As I’ve gotten older I’ve tried my best to hide my age. I’ve never lied, but while I was working at Intel I certainly wasn’t telling my staff how old I was. Or my friends for that matter. Maybe they knew, maybe they didn’t care, but I didn’t want to be seen as an old lady. So I just kept things quiet. I even removed all my birthday data off of Facebook. How pathetic that seems now! But now things are different! Everyone knows how old I am, everyone knows how young I was when I started having symptoms, and as far as I can tell no one cares! They love me, they respect me and my age has nothing to do with it. What an idiot I was, I wish I would have been as loud and proud about my age as I am now about my diagnosis. I guess Alzheimer’s is making me wiser and more in the moment. I will take that as another blessing that has come my way.
|My dancing buddies!|
|On our way to DC!|
The event itself was filled with moving speeches, training on how to ask for support from our elected officials, and amazing people sharing their, or their families story of how Alzheimer’s has affected them. Bob wasn’t able to be there with me but I felt cared for and watched over by so many sweet friends.The only bad news was I got very ill on the last day and wasn’t able to travel to Capital Hill to speak with our representatives about the legislation we need their help with. Not only that, but I was sick for almost two weeks. Thankfully that is all behind me now.
|Harry Johns & the AIM Superstars|
Since it’s my birthday month I plan on having as much fun as possible! Yesterday I had lunch with my girlfriend Andi who I’ve know since 6th grade! And I have a few other dates on the calendar so we will officially call this birthday month. I am grateful for all the love and the great excuse to see each other. We also have a family birthday Dinner planned with my daughter and her fiancé and my husband of course!
So that’s my update. I’m doing pretty well and definitely living well with Alzheimer’s! And I plan on continuing that for as long as I can!!
Thank you for all your support and prayers. Oh, and all the birthday wishes too❤️🎂❤️ God bless you all🙏🏼
Dearest Pam, thank you so much for continuing to share so much news. It certainly helps us to empathise and to pray specifically for what you want and need. We pray for you, Bob, and your wider family. I think we've met only Kristen? Could you or Bob please identify the people in your lovely family group photo? (Deja vu moment, here - have I asked this already?)ReplyDelete
Happy Birthday to you, Pam. You continue to inspire me, and I am sure countless others, with your positivity, persistence and candor on your journey.ReplyDelete
64 - woot, woot. Hope you played the Beatles Bday Song all day...."when I'm 64"