FAMILY

FAMILY
I fight for a cure for me & our amazing children❤️

Sunday, October 20, 2019

October update πŸ˜€

Packers vs Raiders

Sitting at SFO waiting for our flight to take off. Bob and I are going to Green Bay to watch the Packers play the Raiders! Two teams that we like, but since we will be in Green Bay I’m rooting for Aaron Rodgers and the Packers 🏈

It’s been a busy few weeks and yesterday was extremely taxing. I got up early and drove to Pleasanton to take my ‘behind the wheel’ annual driving test. It’s always emotional and a little nerve wracking. This is the second time I’ve had to take this test. The DMV rep was extremely nice and chatty which helped me to calm down. The last guy was a real jerk.

We drove around Pleasanton and I had to drive on the freeway too. I use to work in Pleasanton many years ago when I was working for NCR and AT&T Computer Systems. I knew the area and felt pretty comfortable. To prepare for the test I also spent several hours driving back and forth to the DMV and driving on the side streets. It was really helpful and because the area was somewhat familiar to me I was pretty calm.

I missed 12 points on their test - but not sure what that means. The only thing I cared about was that I passed!! I’m not sure what next steps are but I am expecting an official document from the DMV in a few weeks. Whew! I’m willing to give up my car when the time is right but I feel like I’m aware, alert and very comfortable behind the wheel right now. Next year that could change and I will be ok with that too. Its all part of my new normal....

Last week was also a milestone for me. I finished my term on the Alzheimer’s Assoc National Board of Directors. I wasn’t ready to leave but rules are rules and those of us with the disease are only allowed a two year term. I truly enjoyed every minute with the staff and with all my fellow board members.

I met some amazing people who I know I will stay in touch with. I learned a ton about the research and the exciting breakthroughs in science. I served on a task force to update our Mission & Vision statement and thoroughly enjoyed every minute with the sub team. I used my brain and I added value.  I was heard and I was surrounded by people who cared about me. It was truly a highlight in my life and I hope and pray that I can see my fellow board members again very soon.

When I got back from Chicago I spent a few days with Kristen and Celly (her dog). Ryan was out of town and we had a good time. I spent some quality time with Celly too and loved having him jump on my bed and lay with me in the morning. And then before I knew it I was packing my warm clothes for a trip to Green Bay to see the Packers play the Raiders. And that’s where we are right now. Such friendly people and the Packer Hall of Fame was great. Bob was in heaven and I’m so happy we were able to do this together. We also drove out to Oconto, a tiny little town on Lake Michigan. It was beautiful and I’m glad we took the time to see the water.




Tomorrow we will watch the game and then fly home on Monday. I had another infusion a few weeks ago too and didn’t feel that great afterwards. It was infusion #5 for the Eli Lilly trial and maybe I was just tired, or maybe I am getting the drug and it’s effecting me. Who knows! Either way I will stick with it until we move to Phase 3, or it gets cancelled.

Our next adventure is in early November when we will join Maria Shriver and her team at Move For Minds! I’m excited to see her again and to share my story there with all the participants. I’m also looking forward to working with her on the Governor's Alzheimer’s Preparedness Taskforce! Bob and I will be there together and it will be great to be working together to help Californian’s deal with this epidemic.

That’s it for now. Life is good and I am blessed to have support and friends and activities to keep me going. I am definitely slowing down a little and need more rest, but that’s ok. I will keep doing what I can, while I can. Traveling and waking up early due to different time zones definitely takes its toll on me, but most days if I rest in the afternoon I can  be productive.

I also wanted to thank you for your donations and for your support for our Alzheimer’s Walk! We look forward to the event every year and this year I will be on stage again holding the blue flower along with some of my friends who are also living with this disease😁πŸ’ͺ🏼 We won’t make the top fund raiser this year but that’s ok. We have raised over $27,000 so far and I’m happy about that.  Buni’s Buddies will be there with our family and friends and I look forward to the walk every year. And happy to be raising funds to help us find a cure and support research and programs through the Alzheimer’s Association!

Onward and God bless you allπŸ™πŸ» Keep those prayers coming πŸ’œ

PS - the Packers won and Bob was in heaven! This was his dream trip and it did not disappoint!

UCSF CLINCAL TRIAL 

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