Update on my driving situation 🚗

Today is June 8th - the day of my DMV hearing! This morning at 8am I waited patiently for the DMV folks to call me. To my delight I had the most wonderful and kind and friendly person on the other end of the phone😊 I'm not sure what I expected but I didn't expect to be speaking to someone who was so happy, friendly and very easy to talk to!

We went through the paperwork that was filled out by my neurologist (Dr. Sachdeva) and Ms. Williams reiterated what had been stated earlier when I met with Dr. Sachdeva on April 27th.  

Dr. Sachdeva noted that I was stable with my diagnosis of early stage AD, that I had cognitive impairment and short term memory issues. She also mentioned in her notes that I was OK to drive as long as the DMV cleared me. She stated that I was very capable! And that my issues/symptoms were mild.

The hearing took about an hour and we continued to talk about my symptoms and the option of getting a provisional license. Ms. Williams was very kind and sweet and she shared with me that her mother is currently living with Alzheimer's. I don't think it's a coincident that she was selected to interview me!

She agreed that I should be able to take the written test and the driving test, and that the DMV will make a final decision after that is completed. She has already signed me up for an appointment in Pleasanton near Stoneridge Mall. I'm very comfortable with that community and I'm hopeful that I will be able to drive again🚗

In the mean time I will be able to drive after Ms. Williams sends me a provisional license! The only stipulation is I need to have a licensed driver in the car with me. I know my friends that are local will be happy to drive with me, especially as I'm doing trial runs for the DMV behind the wheel test on June 30th. I know my family will help out and will test me daily about the DMV written test and hopefully my brain can hold all the correct answers in my head🙏  

If I'm not able to pass the written test I will know for sure that my time driving is over. I will be OK with that. I will have done everything I could to continue to drive and I will be thankful that we have so many options for car services, Lyft, Uber and Onward.

So that's my update on the driving situation! I am also very excited about the Biogen announcement that came out yesterday. The last time an Alzheimer's drug was approved by the FDA was in 2003. Aducanumab has been given accelerated approval status. According to Biogen the drug given once a month through an IV begins to dissolve the amyloid beta plaques. I will sit tight and see what's next for me. Maybe I will be able to get the drug, maybe not. There are still so many more hurdles to jump.

There is a lot of controversy about this so I will continue to have hope and to speak of the importance of hope for all the caregivers and for those of us living with Alzheimer's and other dementias. When I was interviewed with ABC I talked about hope and the importance of me having more time! I started crying when I talked about our seven grandchildren and how important it is for me to be in their lives. 

Thank you all for your support and for your generosity to help us find a cure. I am in awe of your kindness and love. I see it every day either in person, in text or online. My husband and Kristen have been so helpful for me these past few months and are cheering me on! So have my dear friends - THANK YOU💜 I will keep fighting until I can't.

I'm sending love, hugs, blessings and prayers to all of you🙌

May Update - One Day At A Time!!!

Infusion #25

Happy Monday to all of you! I hope you're having a great day and enjoying your friends and family. It sure is nice to be able to get outside and spend time together with those we love💓 

This month was pretty crazy! I mentioned last month that the Aricept was really bothering me and causing a lot of issues, headaches and more. I decided to go back to the lower dose I had been taking since 2016 and what a life saver that was! I'm still dealing with ringing in my ears, headaches and exhaustion but at least my spirits are high and most days I'm in a pretty good mood and can stay active now.

I've had two infusions since my last blog - one in April and my final infusion for the Eli Lilly Trial was last week - May 17th.  I still have cognitive testing, an MRI and a PET scan in June. With the PET they will put radioactive dye in my veins and then take pictures of my brain. I don't know when/if they'll tell me the outcome of our Lilly trial but I'm extremely thankful for UCSF and all of their staff. We need more people to get involved with clinical trials - so if you're up for it please look up alz.org/trialmatch! They have many types of trials and those of you without any cognitive issues can help by signing up. If you have any questions about it please reach out via email, text or on Facebook. I'm also hoping and praying that there will be another trial for me to participate in later this year🙏

So the big thing that happened recently- and I may be repeating myself from last month - but my drivers license is suspended! My neurologist filled out the paperwork last month and just a few days later a letter from the DMV came in the mail. The paperwork said 'NO MORE DRIVING'.  

I have an opportunity to a hearing and I have chosen that path. It's a phone call so it should be pretty easy to navigate. My ask is for them to allow me to drive within a 5 to 10 mile radios of our house. I know it's a long shot but I figured I'd give it a try. At this moment I am not allowed to drive and have been taking UBER and asking my friends for rides. It's been almost of full month and I've adjusted to spending more time at home. I do miss my car and the freedom but honestly I'm thankful for all the driving time I've had. Many folks with this diagnosis get their license taken away immediately.

Kristen and I had a fun mid week getaway in early May at the Ritz Carlton in Half Moon Bay. It was a much needed break and the food at the hotel was amazing  Our room had a glorious view of the pacific ocean and it was just what we needed. We walked on the beach and went shopping and in the evening we watched some quality 'chick flicks'. I definitely recommend getting away now that things have opened up. I think it was good for Bob to have some downtime too. He's working very hard with his new job as the CEO of the Walnut Creek Chamber and I'm needing a little more help so taking a break from me is essential to his health.

For Mother's Day I used my mom's Dresden china and sterling silverware and Bob cooked up an amazing feast! It was nice to celebrate the day in style.

Afterwards we went to a movie! Fried Green Tomatoes. I forgot how sad it was but it sure felt good to sit in the theatre - there were five people watching the show - including us. They have some serious protocols when you're buying the tickets but we made it work for us and we got to sit next to each other. We've all been vaccinated and everyone we've been around has been too. We still wear our masks but thankfully not as often as we used to.

I had a great time with some of my friends this month too, and I went to Santa Cruz for the day with Buck & Karen! I've known them for almost 30 years and we always enjoy each others company. The ocean is my favorite and I was able to take them down 'memory lane' and showed them the house I lived when I was in 3rd & 4th grade.

Bob and I had a delicious meal with Tim & Elaine earlier this month too. We sat outside and talked and talked. It was lovely and I'm hoping to do more of that with some of our other nearby buddies. 

Bob and I were also able to have dinner with Kristen last week in downtown Danville. I had to have cataracts surgery on Thursday and Kristen was doing all the driving and staying with me during the procedure. It was/is amazing how much better I can see even though its still healing. 

Later this week they are doing the other eye! I have to wear sunglasses all the time in the house AND outside because of the brightness, but its definitely worth it. I'm sure things will calm down soon. I've struggled with the directions with all the eye drops but I think I have it figured out now. I try not to get frustrated and I have all the directions written down. My bestie Sylvia will be here to help and I can’t wait to hang out with her😊

Rusty continues to be the best caregiver kitty EVER and I can't imagine not having him by my side day and night. Our fur babies sure do bring us joy 😻

A few weeks ago I thought I wouldn't be able to write another blog but now that my medicine is back on track I think I have a few more EXCELLENT years ahead of me💜

I started seeing a therapist and she gave me some good advice last week. She wants me to keep blogging - even if its only a few sentences. She wants me to 'build my tribe' and she wants me to have a mantra that I can say/chant when things are buzzing around and causing pain in my brain.

That all sounds good to me! I need downtime, I need to quit freaking out about not being the top Alzheimer's Assoc fundraiser and I need to rest and relax and avoid headaches if possible.

Thank you all for your support and donations and friendship. I know some of you are alone too and not able to drive so please reach out to me so we can stay connected via FaceTime, Zoom or on the phone. I'm happy to be part of your 'tribe' if you need support.

Love, peace and blessings my friends🙌

Birthday Month - 2021🎂

It’s been a while since I’ve posted / written on my blog and I thought today might be a good day. I’m having some issues with my medication - my neurologist gave me a higher dose of Aricept and my stomach doesn’t like it very much! I haven’t had a lot of energy and there are days that all I want to eat / drink is a smoothie and very bland food. I'm hoping to connect with her soon to see what's next. This cannot continue.....

Thankfully last week my stomach cooperated and I was able to have a nice dinner with Bob on my birthday at The Slanted Door. Earlier that day I had lunch with Kristen and on the weekend we celebrated with Ryan & Kristen at Piatti. It was definitely a great birthday week 🎈 I would also like to send a big thank you to all of my friends who sent me texts, emails, cards and FaceBook notes! Over 200 of my Intel buddies & family/friends  reached out and that meant a lot to me!!

Bob has been swamped and accepted a new job as the CEO of the Walnut Creek Chamber of Commerce.  He's been so busy with that and with his interim job at the SVO Chamber that some days I barely see him! I'm sure it will show down when he can focus 100% on Walnut Creek and hopefully he can take some lunch breaks with me.

My short term memory loss is annoying but I’m turning it into a positive! I can read the same books I've read before and I don’t remember what happens! I can watch Grey’s Anatomy over and over again - six time to be exact and still enjoy it!! Some of the episodes I don’t remember what happens, but I will never forget that Derek died. I’ve  watched it so many times and that episode still brings me to tears. Do I know what I had for dinner yesterday? Probably not - but does that matter ?? The real issues are the headaches and constant ringing in my ears, and my lack of CRS (can't remember sh*t)! I'm hoping this will change soon but either way I will keep going!

Bob & Kristen and the rest of my friends and family are patient with me. I also have a trick - when I’m talking to people I always say “we might have talked about this already but .(fill in the blank)”. I know things will get worse before they get better but that’s ok. We all knew this is what happens when you have Alzheimer’s disease. I am grateful every day for what I can do and try not to focus on the negative issues I'm dealing with.

I've made adjustments and try not to schedule too much on my calendar. Any time I have a phone call or ZOOM I have to lay down afterwards, and sometimes I have to take some Tylenol to stop my head from pounding.  I can still drive but that may be coming to an end. I have to take my annual DMV written test, and I have to take a driving test behind the wheel this year too! I'm not sure how that's going to go and I'm pretty sure I won't pass the written test because I won't be able to remember the correct answers. Honestly I don't care either way! I would be happy to hire a care partner/buddy to be my driver and to help me out. If I find the right person that could be really fun😊

So enough of the sadness and bad stuff that's going one. Let's talk about the good stuff💜 I've had both of my vaccines but won't be out and about until May and that's ok. I have a few lunch dates on the calendar already and am looking forward to seeing some of my friends. I've done a lot of knitting and finished another lap blanket. I will be using that as part of my fundraising for our Walk2EndAlz! I really want to be one of the top fundraisers again so look for my posts on FaceBook soon. Since my last blog we also celebrated my daughters birthday in Sausalito and that was fun. Staying at their house and spending time with Celly was great too. 

 

I had another infusion -- #24 at the end of the month and shared my fancy Kate Spade shoes. The next one is tomorrow and this time Kristen will be with me! I'm very excited about that. It's been a long time since she's been able to take me to UCSF. I'm going home with her too and will spend some quality time at her house. 

I'm still listen to Audible books almost every day and keeping active and engaged. These last few weeks I've read five books on Audible and am rereading ''Something In the Water" now. Listening is good for me even if I have to take notes on the story line and characters. It's calming and I'm  pretty sure it's good for my brain and my attitude.

I'm still walking on the Iron Horse Trail, doing my yoga, meditation and prayers, but I'm also spending time with Rusty on the couch and dealing with my headaches. I've decided down time is essential. 

I hope you are all doing well and I hope to connect with some of you in person later this year - or maybe next year! We'll just take it one day at a time.

Thank you as always for your thoughts, prayers and notes/emails/Facebook posts! You all keep me smiling and lifted up🙏💓

 

Vaccine time💉 Blog #106

Old photo of my beautiful roses!

It’s a sunny day here in NorCal☀️ We’ve had our share of rain too but today it’s beautiful outside but very chilly. I missed writing a blog last month. I’m not sure why, probably exhaustion from all the activities and Zoom calls, or maybe I forgot...

I’m on the couch typing on my cell phone so please excuse all the typos. I’m exhausted and have a splitting headache but I felt like today was the day to share my latest issues. 

I have a nice view of the golf course and am enjoying all the birds. What I’m not enjoying are all the turkeys that keep hoping over our fence to eat the bird food!! They are annoying and make such a mess! Oh well, we will be ok. I can buy some more food next week. 

February was another busy month. I read several books, walked most days, knitted a few items and started another blanket. I’m addicted to tennis and watched all the US Open matches I could! I had another wonderful weekend visit with Kristen & Ryan while Bob got some quality time with his daughter, son and family up in Chico. 

I was busy last week with the Alzheimer’s Assoc State Advocacy Days! It was a little overwhelming and the first time we did it on Zoom. I definitely missed the face to face meetings and hugs from our friends / Senators and staff . But it was a huge success and I was so impressed with our staff and the way they pulled this off! Kudos to all of you 🎉

My personal promise garden 💜

The biggest issue for me was getting online and navigating all the Zoom meetings. At the end of each day I was a mess. I had horrible headaches and was exhausted. I want to thank my team and the staff for helping me and texting me so that I could participate in this! I really want to stay engaged in advocacy, even if it’s difficult. 

Since my last blog I’ve read three books - Fates & Furies, The Four Winds, Magic Hour and I’m almost done with Raven Black. Let me know if you have any good suggestions for my next book please 📚 

Yesterday I had my annual checkup and will be getting blood work soon. I’m anxious to see how I’m doing. Today I had my annual neurology exam too. I made a list of things I was struggling with so that I would remember. Bob was with me too of course. She increased my medicine (Aricept) to a higher dose and wants to see me in three months. I gave her a list of my recent issues such as: short term memory issues, can’t remember characters in the books I’m reading, lots of headaches, constant ringing in my ears, sensitive to sound/ loud noises, etc... I could go on and on but I won’t. It’s annoying but we all know this disease is progressive and I guess I am progressing. I started having symptoms in 2012 and my diagnosis was in 2016. So I guess this is normal. 

On a happier note I am finally getting my first vaccine on the 17th! The second one is in April so maybe in May I can schedule some lunch dates with my friends and family 😍

So that's my story! I’m still very happy and active and engaged. I had a great Zoom call with Melaine & JeanAnn today, text with my high school bestie Andi and speak often with Jane & Judy too. I'm active on social media and feel connected. Thank you Linda, Karen, Monica, Arthena, Elizabeth and many others I'm probably forgetting! Kristen checks in on me daily and is awesome (of course). One of my other Intel besties, Debbie is going to be my driver for my vaccines 💜💉 I am definitely feeling the love! Buck & Karen have helped me too!   

Bob is working hard and enjoying it! Rusty is still the best caregiver kitty in the world. He’s always by my side and loves to snuggle. 

I hope you are all doing well too! I miss you so please call, text, FaceTime or whatever😀 I hope in the next few months we can get back to normal🙏

Much love & blessings for all your support, kindness  & donations to help us #ENDALZ 💜💰🤩

February Update 2021 - Blog #105

Happy Monday! It's a new month and a new day. Every day is precious for all of us, but especially for those of us living with Alzheimer's and other dementia. I truly have learned to cherish every day and to listen to my body. Some days I need to rest. Some days, like today, I am filled with energy and just came back from a wonderful walk around Danville and the Iron Horse Trail. The sun was out and I was listening to my book and I couldn't have been happier. 

January turned out to be a busy month for us. Bob has been busy working and continues to do most of the shopping and creates delicious dinner items for us. We also take advantage of Door Dash and other take out options when we're in the mood. It's nice to mix it up a bit and his job takes a lot of of him. He's putting his heart and soul into his interim job as the CEO of the Silicon Valley Organization. As many of you know he was the past president and CEO of San Francisco Chamber of Commence. I know he will make a difference for them!

It was a busy month, I actually had two infusions in January! That doesn't happen very often but this month I had one on Jan 5th and then again on Jan 27th. The first infusion included all the cognitive testing and I came home wiped out. Infusion #22 was pretty easy! They initially found my vein in my left arm but then something happened and the injection site started swelling! So of course they went into my right vein. Thankfully most of the time it doesn't hurt when they are trying to find my veins. The nurses are amazing and I always look forward to my time at UCSF. We brought them some See's candy this time, and last month my bestie Debbie made them some toffee😀

I've spent a lot of my free time knitting too and am in the process of making my first hat! It's definitely not perfect but I'm sure the next one will be better. I also made a small cowl scarf for my friend Dani who is a super star Alzheimer's fundraiser and a wonderful person! My next project will be another Alice's Embrace blanket. I will send some pictures online when I'm finished! Knitting has turned out to be something I really look forward to. The combination of knitting and listening to books really works for me. 

This month's book was 'The Dutch House' by Ann Patchett. It was WONDERFUL. I will probably read it again in a few months. I would love to know what some of your favorite books are too! Please send me a note on Facebook or text me if you're up for it.

My shoulder continues to cause pain and thankfully my chiropractor has helped quite a bit. I have more range of motion and I'm hoping some day for it to heal. 

Friends mean the world to me! Connection is so important, especially during these tough times. I'm not able to drive to my daughters house but I was able to spend a few days with her thanks to two of my dear friends Buck & Karen! They had offered to drive me anywhere I wanted to go a few months ago but I hadn't taken them up on their offer. It was perfect timing and I spent two days there, and then they came to get me and took me home. I can't tell you how grateful I am for their kindness and friendship. 

One of the highlights of the month was a meeting I had, along with others who are living with AD, with the FDA. It was a closed session, very private affair. There were several of us who shared our journey and the fear and sadness we have about our future. It was extremely emotional for all of us. Many of us cried and during the Zoom call you could see that many of the participants from the FDA were moved to tears too. After our meeting the FDA decided to extend the review period for Aducanumab, the first new treatment for Alzheimer's in decades and the first that appears to slow progression of AD. These meetings are critical but they definitely wipe me out. 

I also wrote a letter to the Editor of the East Bay Times and that was published today. It was definitely a busy busy month for me. Bob and I ended the month with a much needed lunch date at Crumbs in Danville. We are now able to have outdoor dining and it was the first time we'd been out together in a long time. Our daughter Kristen joined us and it was fabulous. Perfect weather, amazing food and definitely good company.

So that was my month - beyond busy for some reason but that's ok! I struggle daily with remembering conversations and events. I have my family and my friends to help me. I'm sure it's annoying at times but it's all quite normal for someone living with this disease. 

Rusty is still the best kitty ever and follows me around the house. He sleeps with me, snuggles with me when I'm reading and definitely is a very good caregiver kitty.

I hope you all had a great month. We are looking forward to 2021, to the vaccine, to friendships and social events and lots of hugging - when the time is right. We all need connection so let's hope we can get back to normal soon.

Thank you for your support, friendship, emails, text and wonderful phone calls! You all lift me up and keep me smiling. God bless you🙏

Good Riddance 2020 😆

Well here we are at the end of probably the most interesting and the most frustrating year for all of us! I feel like I weathered the storm pretty well. The lockdown and lack of connection wasn't great for an extrovert like me but I made the most of it. The lack of physical contact was difficult too. There were good days and bad days but mostly I was ok and made myself busy and got outside as often as I could. I know that next year won't be easy but hopefully the vaccine will allow us to get out and about a little more. And to have some social gatherings that don't need to be outside and with our masks on! That would be a big deal for me - touching, hugging and hanging out - that's my wish👫 

This month kept me busy most days and I started on December 1st with Infusion #20 at UCSF. It went well and I made some cookies for the staff. That always makes me happy and it's definitely something they enjoy! Everyone loved my shoes and that always makes me smile. I have another infusion on Tuesday Jan 5th that will include cognitive testing which really stresses out my brain. One of my besties - Debbie - is making toffee for them! She's pretty darn amazing. Oh - and for Christmas she dropped off a bunch of KETO and gluten free items for us, and a huge bottle of Vodka. Now that's friendship😁

I tried to keep busy every day and to connect with friends and family. Some days were better than others but that's ok. I was able to get online and share my journey of living with ALZ and to thank some of the ALZ Assoc volunteers for their support as I shared a "mission moment" with them. I always cry when I talk about the difficulties we had getting my diagnosis, and the sadness we felt when we heard the official news that I did indeed have early stage, early onset ALZ. I do know though that my story and sharing it with volunteers motivates them and reminds them why they are working so hard during walk season and all the other months of the year. Thank you Ondine, Brittany and others for the invitations and the opportunity to share my story.

I finished a few knitting projects this month too and was able to give them for Christmas gifts! I'm out of yarn now which is something that's never happened to me before, so as soon as I'm done with this blog I will be going online to get some more😍 I love knitting while I'm listening to my audible books and Rusty especially likes to help me and try to play with the yarn! LOL

Speaking of reading, I did re-read 'Where The Crawdads Sing' and it was wonderful the 2nd time around. I decided I didn't like our book club selection so I decided to read one of Barack Obama's selections/ recommendations. 'The Vanishing Half' by Brit Bennett. It was good, interesting but the story kept going back and forth and I had a hard time following it. I starting writing down who was related to whom and that helped a little. It's worth reading and an interesting journey through the life of African Americans who have very light skin - to the point that most people think they are white. 

I just started another book that my brother Bob recommended - 'Devil's Teeth' by Susan Casey. It's non fiction and most of the action takes place in San Francisco on the Farallon Islands. I am loving it for a few reasons: 1-I think sharks are fascinating and they are very smart and savvy, and sneaky too. 2-My dad was actually stationed on the Farallon Islands. In 1939 the US Coast Guard took over the lighthouse service and the Navy ran an secret radar station from the Farallon's in WWII. There were only 78 people living there at in 1942. 3-my mom shared pictures with us when I was a little girl, showing us how they transferred her (and the others) from the boat to the island. It is not for the faint of heart. Anyway - it's a great book if you like sharks and want to know more about them!

On another note - unfortunately my shoulder is not getting any better so I started going to our chiropractor. She is a wonderful woman and we've known her for many many years. I'm going weekly now and she's adjusting my shoulder and giving me some new exercises to help with the pain. Some day I will be pain free and have full range of motion! But  honestly the best part is I get to talk to her and hang out with her while she's working on me. It was like old home week and just that one day of connection each week has really helped me. I definitely look forward to our appointments. Thank you Dr. Christine Thompson🙌

My fat cat Rusty turned 8 years old this year too! His birthday was Dec 3rd. I did my best to put an outfit on him but he was not having any of it! I did snap a photo of him with a tie on but I had to take it off immediately. He definitely doesn't like clothes - LOL😀 He's the best kitty ever and I am so thankful for him. 

Our Christmas was small and safe - similar to our Thanksgiving. We had a great meal with Ryan & Kristen, and Celly too of course. I was able to spend a few days with Kristen after Christmas and help her 'declutter' her house. We also walked a few times with Celly and drove around to look at all the Christmas lights. It was truly a wonderful, safe family experience.

So I guess that's it! Definitely a busy month and some wonderful phone calls and FaceTime chats with my friends and family.

Wishing all of you a fabulous 2021. I appreciate all your support and friendship and prayers. I am doing OK and when my brain isn't working I just stop and relax and pet my kitty. Christmas gifts / shopping and remembering what I bought was extremely difficult. I did the best I could and that's all any of us can do.

God bless you and HAPPY NEW YEAR!

Happy Holiday Season 🎄

Well here we are at the last day of the November. It's hard to believe we are heading into the Christmas/ Hanukkah season. I hope you all enjoyed your Thanksgiving celebration, be it small or large. I know many of you had to change your normal routines and celebrate alone. Thankfully ZOOM and FaceTime help but there's nothing like a big hug from our families and friends.  I've talked about hugging before and I am very much looking to the day when I can hug my friends and not have to wear a mask. But in the mean time I will follow the rules and stay safe!

We were able to spend our Thanksgiving this year with Ryan & Kristen, and Celly too of course. We all got tested for COVID so we could spend the day together and thankfully we were all negative! It was a wonderful calm quiet day and the food was fabulous. I'm not good with crowds so having the four of us worked out well. And congratulations to Kristen for making her first turkey dinner! You are Ryan are excellent chefs🦃

This month was pretty busy for me, but only because being busy keeps my mind in tack. I finished three books this month - 'Maybe You Should Talk to Someone', 'Night Road' and 'True Colors'. They were all good so if you want any recommendations let me know. My bestie Monica recommended the first one and it was fascinating. The other two are by Kristin Hannah, my new favorite author. Right now I'm re-reading 'Where the Crawdads Sing' and am thoroughly enjoying it the second time around! 

I was able to join some of our FOAS friends on a ZOOM call and reconnected with Nick & Jane Mallett. They live in England and we miss them very much! It was fun to see some of my other friends on the call too. I decided to join their book club and will be reading 'Girl, Woman, Other' by Bernadine Eavaristo. I don't know much about it but I will give you an update next month.

Most days I am walking 3+ miles around either the Iron Horse Trail or just wandering in Danville. When I'm walking I'm listening to books which is why I have read so many. Sometimes after my walk I continue to listen while I'm knitting. I don't watch TV until after dinner and I like to be busy, so reading, knitting, texting with friends and all that make the days fly by.

I had Infusion #19 earlier this month and tomorrow I have Infusion #20! I guess that means I need to figure out what shoes to wear😁

I'm looking forward to seeing everyone and if I can get my act together I might bring them some homemade cookies. Last visit I brought Gluten Free brownies and sugar cookies! They were so happy and since they are so very nice to me, I feel it's only nice to give back to them. I'm extremely grateful for such an amazing staff at UCSF.

The biggest bummer of this month was making a decision to stay home in December and miss our annual Maui excursion. It wasn't a tough decision, it was the right decision, but I was still a little sad. I love the ocean and the warm weather but I can't imagine spending two weeks there under quarantine and not being able to participate in all the fun things we normally do! We are hopeful to return next year🌊

Another cool thing this month was our Zoom call with Gov Gavin Newsome. This was part of our role on Maria Shriver's Alzheimer's Task Force. Bob and I spoke and shared the recommendation for a digital portal - California Cares. Right now there are too many places to seek information. We need one central place, spanning dozens of federal, state & county departments. We really need a one stop shop! Many thanks to Maria and her staff and all of our colleagues who have been working on this all year.

So I guess this has been a busier month than I thought. Getting outside helps me feel connected and all the texting/FaceTime/Zoom are wonderful too. My shoulder is still in constant pain but the ice at night helps. I am more anxious than I used to be and I get pretty exhausted in the afternoons. I am sleeping well which is great! My short term memory is horrible but thankfully I'm a good note taker. Every day I write down what I did or want to do and then check it off. I always feel a sense of accomplishment when I'm done. So today I can check off 'write another blog'! That will make me happy💜

I'm thankful for your support, your prayers, your texts, cards and phone calls. I'm thankful for the Alzheimer's Assoc virtual support groups every week. I'm extremely grateful that our family got to spend Thanksgiving together. I'm thankful for outdoor events with friends, with the ability to walk and to eat outside. 

I'm also beyond grateful for my amazing husband and caregiver extraordinaire. He's the chef, the grocery shopper, the bartender and has many other amazing talents. He does all of this with a smile on his face and we are making the most of our 'new normal'. 

My other amazing caregiver, my daughter Kristen checks on me every single day! She sends me texts, calls me on FaceTime, comes over when she can and I'm extremely grateful for her support. As you know, family is everything! 

I'm wishing you a wonderful holiday season! A month filled with happiness and good friends. I'm sure the holidays will look different this year too, but together we can get through it. God bless you all for your support, donations, friendship and kindness.  I can't wait for the day that we can connect in person🙏