I fight for a cure for me & our amazing children❤️

Friday, December 8, 2017


We are in paradise again! Back on Maui at our condo where we come almost every year. It’s a beautiful warm day. No clouds in the sky and a soft breeze keeping us cool. For those of you who have been following my blogs for a while, you might remember that last year when we were here we got some bad news regarding the Roche/Genentech clinical trial. It definitely put a damper on our time here but we did rebound and have a wonderful time.

This year we are celebrating our 5th wedding anniversary and will be hosting dinner with some of our friends and family! We are very excited to see everyone. Most folks will be here tomorrow with a few more coming in a little later. We’ve already confirmed the venue and the menu and are so thankful that we will have them with us to share this special celebration. We aren’t sure how many more anniversaries we will have so we are making the most out of every year! And as most of you know, I actually try to make the most of every day!

We are also dealing with an extremely difficult and tragic family situation and so being here during this time has been therapeutic. Maui is my ‘happy place’ and I've been coming here for many years, thanks to my dad who sold me his unit about 18 years ago. The ocean soothes me. When I struggle at night with sleeping, the sound of the waves is my first choice to help me relax. Everyone who is here is in a good mood and the food is so yummy. I think I could eat papaya every day💜

We haven’t done much but we are enjoying every minute. The food is spectacular and the weather is perfect. Right now we are outside on the sea wall relaxing and listening to the crashing waves. We were surprised to see some of Bob’s high school friends here from the Antioch Brentwood area. They are delightful and we had a wonderful meal with them last night at their condo. It really is a small world!

A few days before we left I had my 7th infusion and a series of cognitive tests. It was long and grueling. They had a hard time finding my vein again and decided to use one on my right wrist. I am grateful for all of the staff at UCSF. I must say they really do everything they can to make these visits pleasant. I’m also wondering if the infusions are helping me. There are days I feel like my memory is intact! But I’m also struggling with my balance and have bumps and scrapes and bruises all over my legs. I’m looking a little bit like an old lady😑

One day at a time! I continue to feel supported and blessed by all my friends and family. I love the visits from my high school girlfriends. Not a week goes by that I don’t have a lunch date or an event with someone who cares for me. All of you are lifting me up!

At the Walnut Creek Walk event last week I was shocked to see our team, Buni’s Buddies, at the top!! But I don’t know why I was shocked. All of you have been so generous and are helping us raise money to find a cure.  Thank you so very much! Without funding there will be no cure. And my new favorite person is Bill Gates! Holy Cow, his generous donation of $100 million should excite and encourage all of us.

We have another full week in paradise. I plan on spending every minute enjoying the ocean breeze and the time with our friends and family. Giving God the glory for this special place🙏

Mahalo to all for your support and prayers. Keep them coming!

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