I fight for a cure for me & our amazing children❤️

Tuesday, June 12, 2018

It’s summer time ๐ŸŒž

In my last blog just twelve days ago I was whining about the cold weather. Boy did things warm up quickly! I think it’s going to be 90 degrees today.  That’s pretty hot for us in Danville. I’m happy about that and went swimming for the first time last weekend. Ryan and Michael were staying with us (our grandkids) and we had so much fun! There’s nothing like getting in the water when you’re hot and tired.

Michael being Michael
Ryan & his buddies
It’s been another fun filled month so far! Ryan and Michael ended the school year and Kristen and I were able to be there for their festivities. We helped with the party in Michael’s 2nd grade class and also helped set up for Ryan’s 5th grade breakfast. It’s such a blessing that we live close to the school and get to see them fairly often. It’s hard to believe Ryan will be in Middle School next year! Yikes, where did the time go.

Many of you know I was serving on the Nor Cal/Nor Nevada Alzheimer’s Association Board of Directors. Sadly my term came to an end. There were several others who were terming off as well. They did a great job of thanking us! They had cake, champagne and gave each of us wonderful gifts. What a great night. I actually cried when they thanked me for my service. It’s hard to say goodbye sometimes, but thankfully I will still see many of them going forward.
The next day I flew down to Palm Desert to spend a few days with two of my best friends!
Doug and Linda May๐Ÿ’œ
Pam, Doug & Linda
Doug and I worked together at NCR over 20 years ago, and when he introduced me to his wife we became instant friends. They used to live in the Bay Area but are both retired now and have a beautiful home on the golf course in Palm Desert. We had a wonderful time and some amazing meals. We also were able to watch the Warriors win their 3rd game against the Cleveland Cavaliers. Wow, that game was stressful and I’m so glad we were all rooting for the Warriors.

Gorgeous view from their house
There is so much peace for me when I’m around people who I love, and who love me. There are no expectations at all. More importantly there is no stress. I’m so thankful for their friendship and hope to see them again soon when the weather cools down. The average temperature down there is 106 degrees๐ŸŒž But it’s a dry heat! At least that’s what people who live there say......

Bob and I spent Sunday in San Francisco at Maria Shriver’s event, ‘Move For Minds’. This was the second year we attended and it was sold out! The event took place at the Equinox Sports Club and following the workout there was a fabulous panel. I also had the opportunity to speak again this year, and to remind everyone ‘what Alzheimer’s looks like’. I cried a little and so did many others, but that’s normal for me when I talk about the personal side of this disease.
Pam, Bob & Maria

The workout was specifically created to focus on your mind and your body. It was hard and I was sweating and breathing hard but I didn’t stop! One of the research assistants from UCSF who we have become friendly with attended as well. It was so great to have her there. She is an amazing young woman and I can’t wait to see where her life takes her after she graduates from medical school. Bob and I always look forward to seeing her during my infusions and cognitive testing for the Roche/Genentech clinical trial.

Friday I fly to Washington DC for the Alzheimer’s Association Advocacy Forum! I’m flying alone but Bob will join me on Sunday. I’m not very familiar with the Dulles airport so they are getting me an escort to ensure I don’t get lost and make it to the hotel๐Ÿ˜๐Ÿ˜ I think I could probably find my way to the hotel but I get anxious and nervous when I am in strange locations by myself, and Dulles is definitely not an airport I have frequented often.

I’m ok with flying alone and with navigation SFO, but I don’t want to take any chances of having a panic attack when I’m by myself. I really appreciate all the accommodations the Alzheimer’s Association provides for those of us living with this disease. They make it so easy to ask for help.

So that’s what’s new with us. I have another busy weekend coming up and Bob is busy too. We have a strong balance between work and fun and do a good job of not overcommitting. We certainly make a great team and he does a fabulous job of making sure I am happy and well cared for๐Ÿ’œ Lucky me!

Thanks as always for your love, prayers and support ๐Ÿ™ They really mean a lot to me.


  1. Summer vacations and parties are cool. I think sea location or pool side get together are therefore a great idea. My cousin planned one last year. Mind blowing event venue Atlanta was easy to locate and snacks ordered were way too tasty. Bought new wrap round dress for the beautiful evening. Drinks and desserts were yummy as well.

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