July was busy for us but it was also a great month. One of my best friends who I've known for over 30 years - Monica Chernow - came to visit me! She wanted to help with my infusions and to spend some quality alone time with me. We had a fabulous visit and had some great meals, went shopping and talked and talked and talked. In the mornings we sat outside and enjoyed the birds and the warm weather.
|Bestie's at dinner
I watched most of the Wimbledon finals and got up really early so that I could watch it live! The semi final match was so exciting. It was the longest semi final in Wimbledon history! Can you imagine playing tennis for over 6 hours! Yikes. The whole time I was thinking about Ryan & Michael and wondering where their tennis careers will take them. Kristen was here with me and the next day we watched World Cup soccer in bed together. It was so fun😁
There have been good days the past few weeks, but there has been sadness too. July 20th was the 2 year anniversary of my diagnosis. It's nothing we celebrate. We just acknowledge it and then move forward. It does hurt and bring sadness to remember the words that were spoken to us that day by the UCSF Memory & Aging Center research team. It was especially hard to see the reaction of my kids and my husband. But we are survivors and we are focusing on a cure now and living well, not wallowing in sadness.
Many things have changed since then and my life initially was turned upside down. I am now at peace with this reality and will continue to fight for research funding, use my voice to tell my story and raise as much money as possible to support programs and services! I focus on what I can do, not on what I can't.
Last Friday we played 9 holes of golf at a fund raiser in Pleasanton with Kristen
|Family fun - Pleasanton
They are painting our house this week and the disruption is stressful for me. I had to move everything off the front porch and find a place for it in the front yard. I had to move all the plants out of the atrium so that they could paint in there too. I am worried they are getting too much sun out in the front and have anxiety about the whole process. I don't like change anymore, I like routine and to know what to expect in situations. It doesn't make me nervous, it makes me anxious and stressed. That is new for me.
When people who know that I have Alzheimer's tell me I look great, I always smile because there are a LOT of emotions and feelings going on in my body and in my head that don't show up on my face. I didn't know anything about Alzheimer's until I got the diagnosis and starting reading every thing I could find. Anxiety, sadness, moodiness, exhaustion, constant headaches and tinnitus are just a few of my symptoms. They are manageable and are part of my 'new normal.'
|Silly boy Rusty
I hope you have a great rest of the week and are able to spend time with people you love and who keep you motivated. Thank you for your continued love, support and prayers🙏