I fight for a cure for me & our amazing children❤️

Tuesday, July 10, 2018

July update!

I guess it's been a few weeks since I've written. The days go by so fast! I try to make a list every day of things I need to do. Some times I can accomplish everything on my list, but most days I can't get it all done. That seems so strange to me. Especially because I ALWAYS got all my AR's done when I was working at Intel. Oh, by the way, 'AR' stands for ACTION REQUIRED. I lived and breathed AR's for over 17 years. There was always something that I needed to do, or that I needed my staff to do. Prioritization was key and I find myself doing the same thing now that I'm on disability/ retired.

But today I don't have very many AR's! I already mailed in the checks to the Alzheimer's Assoc that I received this weekend from two of our friends. Thanks again Katie and Marion๐Ÿ˜€ I made some self donations for our Alzheimer's Walk later this year and sent them off to Intel's Benevity tool so that I could receive a matching grant. What a wonderful benefit that is! I sat outside in the very warm sun and did my meditation after I finished my journaling. Now I find myself at my computer!

We have done some wonderful things the past two weeks. A few days after the Alzheimer's Advocacy Forum we flew to Chicago for my National Alzheimer's Assoc Board Meeting! It was super hot there and thank goodness we had no reason to go outside. We arrived late on Thursday night and the committee meetings started bright and early on Friday. 
Navy Pier-Chicago

The view of the Navy Pier from our room was wonderful and I'm happy we didn't need to go outside to appreciate all that Chicago has to offer. I am also very thankful to be on this BOD! Everyone is committed to finding a cure, raising awareness, increasing funding for research and removing the stigma! What a blessing.

I was very excited to be presenting to the entire board this time, along with two of my colleagues. Our presentation was about fund raising and how to utilize the social media tools and to personalize your request for the Walk (our largest fundraiser). I've been very successful using Facebook so I shared my story and my tips and tricks! Afterwards I received great support and compliments. I'm not sure how often those with Early Stage Alzheimer's make presentations, but for me it's been part of my life forever so I had fun with it. Thank you Karen for asking me to join you and to hopefully help the BOD raise more money this year!

The flight home was good. I was upgraded but Bob wasn't. We were surprised but when we saw that the Warriors championship trophy was taking up his seat we were OK with it! Gotta protect that trophy. Go Dubs๐Ÿ€

Ferry Building - SF
After resting up from two weeks of travel we drove to San Francisco for a 'staycation'. My husband spoiled me with a wonderful spa day at Nob Hill Spa followed by an amazing meal at 'SPQR', a Michelin star restaurant with wonderful flavors and gorgeous presentation. We also had time for dinner with John & Janice Gumas at Kokkari! We were only there three days but made the most of it and took several pictures to document this magical time together. We lived there a few years back and it was fun to visit some of our favorite restaurants and sit outside in the sun at the Ferry Building!
It's back to reality with no more travel planned other than our trip to Italy in September. I love traveling but I love being at home too. I need the comforts of home and the love of my kitties. I don't like to be away for too many days but I know Italy will be amazing and we are going with friends which makes it even more special. 

I hope you all had a safe and wonderful 4th of July and continue to surround yourself with good friends and family that you love. We are missing our grandsons who are in Romania. They don't come home until the end of the month but it's been fun to see them with their cousins and to know they are very happy. 

Thank goodness for FaceTime and texting! I even
Our sweet boys in Romania
tried out SnapChat so that I could stay in touch with Ryan but I have no idea what I'm doing!! ๐Ÿ˜Ž Next week Bob is going to spend a few days with two of his sons to celebrate their birthdays, and one of my best friends is coming to visit me! 

Thank you Monica (and Michael) for taking the time to fly across the country to help me with my infusion #15 and to just be here for me๐Ÿ’œ My friends and family continue to surround me with love and support. What a blessing!

That's my latest update! My sleep continues to be a problem but I am doing pretty well and only need a small nap late in the day. My ears ring constantly but I'm almost getting used to it. There are many things I can't do well, but I don't focus on that! I focus on what I CAN do and I continue to surround myself with loving people who I know will help me no matter what I need.

Have a great day and thank you as always for your love, support and prayers. God bless you๐Ÿ™


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