FAMILY

FAMILY
I fight for a cure for me & our amazing children❤️

Monday, June 5, 2017

The waiting is over!

Another busy week and a week filled with joy and blessings!! I found out on Thursday that I made it into the Roche/Genentech clinical trial. I am overjoyed and so thankful for this opportunity to help find a cure. We have been waiting for this all year and our prayers have been answered. My first infusion is on June 21st at UCSF. I am sure I will be a little anxious, but from what I understand it's a painless procedure and all I have to do is relax for about an hour and let the drugs (or the placebo) do their job. The trial is for two years and I will go monthly. The commitment is big because getting to San Francisco and ensuring that I have Bob or one of my other friends or family with me will be challenging for our schedule. But we will work it out!! Thank you for all your support and nice comments on my Facebook page. You all keep me going๐Ÿ’œ

The other amazing news I received is that I have been selected to serve on the 2017 Alzheimer's Association National Early Stage Advisory Group! This is something I applied for last year when I first got my diagnosis. It's a one year term and I am so excited to take my advocacy to a new level. To speak and share my story at potential events around the world and help shape additional services that the Alzheimer's Association might offer to those with early stage Alzheimer's. Our first meeting is later this month.

Last week two different TV shows also aired. One was the PBS special 'Brief But Spectacular' that was filmed a few months ago. The other was an NBC local newscast produced by Jessica Aguirre featuring my story of living with Alzheimer's and promoting the Women's Alzheimer's Movement event, Move For Minds. The comments and support I received from these have been overwhelmingly. There have been over 3000 views and I think sharing my story is helping to remove the stigma of Alzheimer's. That's my goal so I hope that's happening, and I hope I'm changing people's minds about what Early Stage Alzheimer's looks like too๐Ÿ˜Š

Pam & Kristen
Our amazing week ended with a fantastic event at the Equinox Sports Club in San Francisco where the Women's Alzheimer's Movement (founded by Maria Shriver) hosted a multi city mind healthy workout, followed by amazing snacks and a panel of experts who spoke on healthy eating, elder care issues and the science of Alzheimer's. The work out was intense but enjoyable and we ended with a wonderful meditation and cool down. My youngest daughter was there as well as a few friends which made it even more special.

The panel was moderated by NBC Anchor, Jessica Aguirre and she did a fabulous job! My key take away was to make sure you eat 'Alzheimer's healthy'. Which means you are eating to eliminate inflammation! We can do that by eating mostly plants that are rich in color, including mint and spices. The doctor also mentioned that our portion sizes for protein should be very small, not take up the entire plate our food is on. That was a good reminder -- and she stressed organic, grass fed meats, minimal sugar and no processed foods.


It was another amazing week for me and my family. I have decided to appoint Bob as my official press agent and social media executive! I think that sounds like a fun job. He certainly has many more connections than I do and can help spread the word and help to find a cure and he is more than happy to do so.

I hope you all have a great week planned and can spend time doing what you love. As I've mentioned before, having your prayers and support keep me going! God bless you all ๐Ÿ’–

3 comments:

  1. It was an incredible week. Onward!!!

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  2. It's wonderful to see you staying so active and being involved. It's so vital that strong individuals such as yourself help others who are struggling with sharing and living with their diagnosis.

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  3. Another great story and another great week! Thanks again for sharing. This helps me immensely!
    Mary

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