I fight for a cure for me & our amazing children❤️

Sunday, August 20, 2017

Happy Sunday❤

Sunday morning...a beautiful day outside. The birds are enjoying the seed I put out for them, the early morning golfers are approaching the 2nd green and the sun is keeping me warm out on our patio. It is really pretty out here and I love the peace and quiet of the mornings in summer.

I haven't written in a long time. There have been some struggles and my energy is low at times. Overall I'm feeling well, but there have been many days where I needed to push myself to get out of the house. I think that's normal, or I guess that's my NEW normal. One of my friends who also has Younger Onset Alzheimer's said it sounded like depression to him. I don't even know what that means. How do you know if you're depressed? I don't feel sad, I'm not lonely, I don't cry all day. I do have moments of silence and peace where I'm almost paralyzed and just want to sit in the moment. Enjoying the fact that I'm not busy and just feel my feelings. I think that's ok so I'm not going to dwell on it, I'm going to take one day at a time and continue to listen to my body and pray for continued peace and happiness.

I'm still struggling with sleeping and when I get a good nights sleep there is definitely a different start to my day. I am happier, have more energy and excited to see what's in store for me. I'm on my third journal and I write every day, several times a day actually. I love looking back to see how I was feeling and how much sleep I got and what my activities were. It's very therapeutic and it gives me a sense of how things are changing in my life.

Our friend Karen was with us this weekend. She's amazing and wonderful and so kind. We were brainstorming about how to raise more money for the Alzheimer's Walk that's coming up in October in Walnut Creek. I was the top fund raiser last year and my competitive nature is kicking in😎 I'd like that to happen again but I don't like asking over and over again for donations. We came up with some good ideas and it was a fun conversation. I'm excited to see what I can make happen. If any of you own a restaurant or business and want to donate a percentage of your proceeds for a day to my walk, please let me know!

I was also extremely humbled and overwhelmed to hear that her niece has taken up the cause. She is a Girl Scout and there entire troup has 'adopted me' and will be helping me to raise money and awareness to find a cure. They are walking in Sacramento on my behalf and writing letters asking for donations. I'm excited to Skype with the entire troop in a few weeks to share my story with them. Who knows, one of these 5th graders may be the one that finds a cure!

My third infusion of the Genentech clinical trial went well. No issues other than I slept part of the way home from San Francisco. As I've mentioned before the staff really makes the entire experience as painless and enjoyable as possible. I actually look forward to seeing them each month.

It's time to get ready for church and to finish my coffee and enjoy this beautiful day.......Thanks as always for your continued prayers and support. You really keep me going help me to stay positive💜

1 comment:

  1. Tru here. Personally it doesnt sound like depression to ME. Grief and acceptance of dementia creates inevitable sad feelings from time to time, but our brain is working major MAJOR overtime to compensate for pac-man swiss-cheese holes, so fatigue is also inevitable. i try to get as much sleep as possible (a problem with my symptoms) then take an additional nap at or before noon. We need to give our brain as many tools as possible LOL :D