FAMILY

FAMILY
I fight for a cure for me & our amazing children❤️

Friday, September 14, 2018

Beautiful day for blogging ๐Ÿ˜Ž

Hi again! It's Friday and we are leaving for our vacation soon so I wanted to blog a little about my adventures over the past few weeks. It's actually only been three weeks since my last blog, but in my mind, it feels like much longer than that!

The morning sky
Today is beautiful and sunny but a little too hot for me to sit outside while I write this. It's only 71 but in the direct sun that is too hot for me! I was able to meditate and eat my breakfast on the patio earlier today though. The sky and the clouds were amazing and so lovely. This was my view earlier today! I wasn't sure if the picture would turn out,  but I think its beautiful. I'm so grateful for the joy that nature brings.

Things have been going OK. I am noticing changes and progression but I know they are normal. 

At the end of August I was able to join Bob in SLO for a few days. It had been a while since I had been there and it was really fun! My flight was delayed but thank goodness I had an Audible book on my phone and my knitting. I'm glad that I don't let silly things like flight delays get me down.

Bob treated me and my girlfriend Ermina to a spa day at the Madonna Inn on Wednesday. It was such a beautiful day and very relaxing. I got a facial and a massage and then we sat in the hot tub. Ermina is a special person and a special friend. I am so thankful that she came into my life via the SLO Cal Poly connection. I'm excited to see what her future holds as she moves on from her role of CEO of the SLO Chamber of Commerce. Knowing her she will do something fabulous๐Ÿ˜ƒ

On September 1st we went to another Giants game. It was a beautiful 
Celly!
day but unfortunately they lost. Afterwards we drove over to Marin to spend the night and have dinner with Kristen & Ryan. It was Bob's first time at their new house. We had a great time and I especially enjoyed time with my grand doggy Celly. He is so cute and so sweet!


We celebrated Labor Day on Sunday with a lazy day in Antioch with our friends Susan and Stephanie. I wasn't feeling that well and took a nap on their couch. I was able to rebound a little bit and take a dip in their beautiful pool. We had a nice relaxing day and I am grateful that my friends understand this disease and know that there are times I just need to close my eyes and rest.

Pam & Kristen at RNB
I met with Sara Stiles at Intel in Santa Clara (aka RNB) a few days later. Kristen was with me and drove us there. A few months ago Sara had asked me to speak at the upcoming Intel WIN event which is next month. I was extremely honored to be part of it, and before I had to take the medical leave I was the Vice Chair of WIN (Women @ Intel). At the time I didn't know how we would coordinate it but everything worked out fine, as always. 

We used a conference room and put the camera on a tripod. I had to do several 'takes' but after about an hour or so Sara was happy with it. She also surprised me and told me that my speech was actually going to be the keynote! Wow, what an honor. I am so sorry I can't be there in person and I really hope everyone loves it. I cried a little during the filming but I know that tears are acceptable, especially now ๐Ÿ˜‚

Pam, Melaine & Jean Ann
The following Monday I got some more Intel love and had a fantastic meal at True Food Kitchen with two wonderful friends, Melaine & Jean Ann! We had a blast and laughed a lot! All of us are gone from Intel but continue to thrive and do amazing things to help others. I am very thankful for these connections and the continued support from my Intel family, and from all of you. It really makes a huge difference in my life. 

Tuesday Sept 11th (a day none of us will ever forget) I had my 17th infusion for the Roche/Genentech Clinical Trial. I think it's called CREAD for short. My best friend since 6th grade drove up to take care of me. Andi and I lived near each other and used the alley to go back and forth between our houses. We had a lot of fun, probably too much fun but I am so grateful that we are still connected and get to spend quality time together. 

I slept a little during the infusion but they did a good job this time of finding my vein! It actually didn't hurt very much. After the long ride home we made dinner together and I was very happy she was able to spend the night.

Bob's B'day in SLO
And now for the most important event of this month! Bob's 65th birthday! He unfortunately had to travel this week for work and won't be home until tomorrow. But his amazing friends in SLO surprised him with a little wine tasting! Actually, Ermina made this happen and I am so thankful for her. I was feeling badly that my husband was all alone on his birthday with no plans. It definitely looks like he had a good time ❤ Thank goodness!


So that's what's been going on in my life lately. I have also been extremely

exhausted in the afternoons, no matter how well I sleep. 

We leave for a wonderful vacation with some of our best friends on Tuesday. I am taking snacks and healthy food so that I can eat when my body needs to eat. It's a long flight but I've survived in the past so I'm sure I will survive this time too. 

I'm thankful that my friend Marlice will be here with the kitties! Especially for Rusty. He needs love  and hugs and a lot of petting. Such a silly boy๐Ÿ˜ธ Monty will probably be hiding the whole time but at least he will get fed every day!
Rusty Kitty!

I also want to thank all of you for your support and donations to our East Bay Walk to End Alzheimer's. We have a small group walking with us and would love it if you are able to come too! It's on October 20th at 9:00am at Heather Farms in Walnut Creek. We are hosting lunch and drinks afterwards as a thank you for your time and support! It's always an emotional day, but a fun one too. Please join us and consider making a donation to the Alzheimer's Association so we can fund a cure and pay for the services they provide. I certainly would not be as functional without them! Here's the link:


I hope all of you have a wonderful weekend and I promise to share about my adventures abroad when we return. I know it will be magical but exhausting and there will be days I probably won't be able to do much. And that's OK. I will be surrounded by love in a beautiful location and everything will work out fine.

Please keep the prayers and love flowing! I feel it and I need it. Happy Friday everyone. God bless you always๐Ÿ™












Friday, August 24, 2018

August Update ๐Ÿ’œ

This month has flown by! I had to look at my past blogs to figure out when I blogged last and what I said ๐Ÿ˜ It has been a great month and I appreciate your support for the WEGO Health Award nominations. I'm not sure what's next but your support and endorsement is much appreciated. There are many many wonderful nominees so I am not expecting to win. And that's ok with me, to be nominated is an honor and I am very grateful for the recognition.


Pam & Jeff at Sideboard
August started with an amazing lunch with a good friend from Intel! Jeff Trapaldi and I have known each other for a while and ran into each other a few weeks earlier at a local restaurant in Danville. He was kind enough to ask to have lunch with me so that we could catch up. It was wonderful and he's such a good man. Thank you Jeff for making time to see me and for your support during my journey of living with Alzheimer's.

That same week Bob and I flew to San Diego for a celebration of life for a dear friend Ash Hayes. He and his wife Juanita have always been special to us and we made sure that we could be there for his event. It was very emotional and the military color guard was there to present Juanita with a flag. Ash worked in Washington DC for a while and was in charge of the Presidents Council on Physical Fitness. Bob and I met him when he was working with the CSU system and we became close friends rather quickly. He was a kind, loving man and a true gentleman. He will be missed but he lived 94 amazing years on this earth and touched thousands of people. Rest in Peace Ash๐Ÿ™

We also were very excited to have breakfast the day after the service with Leo Cullina and his wife Mary! Leo used to work for me when I ran the Healthcare Team. I don't remember how many years ago that was, and Leo is not at Intel anymore but we picked up as if it was yesterday. It was so wonderful to see him. My only regret is we didn't have enough time together, and we forgot to take a picture!

I also saw my sister and my girlfriend Andi this month and we had a great time at lunch and did some shopping at Stoneridge in Pleasanton. Later that day I took an Uber over to Kristen's new house. It's so big and beautiful and I'm so happy that she is a first time home owner! We had a great time unpacking and shopping and trying to get things all set up.


Barry Bonds -AT&T Park
One of the highlights of the month was our weekend in San Francisco to attend the retirement of Barry Bonds number! Only 6/10th of one percent of players get their number retired! and He is one of them. I'm so glad we could be there๐Ÿ˜Š

He's always been one of our favorite players and is such a great guy. I had the
Pam & Barry -Harding Park
pleasure of playing golf with him several years ago at Harding Park and he was such a gentleman and so helpful. I was overcome with emotion when I realized he was in our four some and could barely hit the ball! I remember he walked down the fairway with me and tried to help me. At the end of the round there was a big event and there were several other professional athletes there. But before he left he made a point to find me, and the rest of the folks on our team to say goodbye. My boss at the time, Scott Harrison is also huge Giants fan and we both remember almost every detail of that day. Congrats to Barry! He certainly deserves the praise he got and I really hope he is inducted into the Baseball Hall of Fame soon!



At Les Mis!
The following weekend Kristen and I went to see Les Miserables at the Orphum in San Francisco. Her birthday is in March and this was her present, even though it was a few months late. We had seen the musical together before, many years ago on her college graduation trip to London. I really don't remember what year it was. But I do remember seeing Les Mis there too and both of us loved it! I don't think I will ever get tired of the music. I could listen to it all day long. 

Infusion #16 was uneventful and even though we were at UCSF for most of the day I survived. Bob was out of town so Kristen went with me and she was able to work while I rested and got my infusion. My Katy Perry shoes were a huge hit on social media and my friend Monica gets all the credit for that! They were a gift from her๐Ÿ˜Š 
Infusion #16 Roche Trial


Later that night we attended the Alzheimer's Assoc East Bay Walk event. My niece Monica was there with her darling daughter and I was so happy to see them! And even though I was tired from my infusion I spoke at the end of the event (cried a little) and asked everyone to please get involved, form a team, and raise a lot of money for research and programs!! It was a long day but supporting them is important to me. They have been a bright light as I go down this journey of living well with Alzheimer's.

So that's what my month has looked like! Pretty busy most days but I also find myself with no plans and nothing to do on some days. Today my friend and mentee Rebecca is coming over with her cute baby and that will be amazing! I can't wait to see how much he's grown since the last time I saw him. Babies are the best medicine to cheer you up and make you smile๐Ÿ‘ถ

It was a busy month and the fun continues next week with a few days in San Luis Obispo with Bob and some time at the Spa with a very dear friend who lives there. I can't wait!!

Thank you for your support. Thank you for reading my blogs and for your comments and feedback. I found out a few days ago how important they were to some of the folks I met. I promise to continue to share my story and my journey for as long as I can. It's helpful for me too! That way I can look back and see what happened in my life and how things have changed.

Have a great weekend and God bless you always๐Ÿ’œ๐Ÿ™





Wednesday, August 15, 2018

WEGO Health Award nomination ๐Ÿ’–

Hi everyone! I was nominating for a 2018 WEGO Health Award in the categories of ‘Patient Leader’ & 'Advocating for Another'!!

I don't know how this happened but I am thrilled. They nominated me for all the work  I’ve been doing to reduce the stigma, advocate for research & share my story with others who are living with Alzheimer’s disease.

The WEGO Health Award program was created to recognize and honor those making a difference in the online health community. It provides the opportunity for community members to thank and support the Patient Leaders they admire.

I am honored to have been nominated! They have asked me to share my nomination so that others can endorse my work and support me. I’m adding the link here for all of you๐Ÿ˜€ 

Please share with your friends and family too if you are able. I think they choose the finalists based on the number of endorsements they get.

Thank you in advance for your support ๐Ÿ™๐Ÿป Over the past two years there have been good days and bad days, but the support, love & prayers from all of you lift me up and keep me going๐Ÿ’œ

The deadline to endorse me is August 17th! I really appreciate your support.
https://awards.wegohealth.com/nominees/15905


Tuesday, July 31, 2018

Feeling the love ๐Ÿ’•

Wow, it's hard to believe tomorrow is August 1st! How did that happen? Time really does fly by and soon the kids will be back in school and dealing with homework and special projects. 

July was busy for us but it was also a great month. One of my best friends who I've known for over 30 years - Monica Chernow - came to visit me! She wanted to help with my infusions and to spend some quality alone time with me. We had a fabulous visit and had some great meals, went shopping and talked and talked and talked. In the mornings we sat outside and enjoyed the birds and the warm weather. 

Bestie's at dinner
We spent time with my daughter and her boyfriend and their dog Celly. She sat with me during my infusion, got my lunch for me and made sure I was doing ok. She cooked for me and got me excited about Weight Watchers and all the amazing recipes they have that are healthy and low calorie! It was wonderful and I'm so thankful that she had the time to come out here from New Jersey, and that Bob helped to coordinate this visit❤

I watched most of the Wimbledon finals and got up really early so that I could watch it live! The semi final match was so exciting. It was the longest semi final in Wimbledon history! Can you imagine playing tennis for over 6 hours! Yikes. The whole time I was thinking about Ryan & Michael and wondering where their tennis careers will take them. Kristen was here with me and the next day we watched World Cup soccer in bed together. It was so fun๐Ÿ˜

There have been good days the past few weeks, but there has been sadness too. July 20th was the 2 year anniversary of my diagnosis. It's nothing we celebrate. We just acknowledge it and then move forward.  It does hurt and bring sadness to remember the words that were spoken to us that day by the UCSF Memory & Aging Center research team. It was especially hard to see the reaction of my kids and my husband. But we are survivors and we are focusing on a cure now and living well, not wallowing in sadness. 

Many things have changed since then and my life initially was turned upside down. I am now at peace with this reality and will continue to fight for research funding, use my voice to tell my story and raise as much money as possible to support programs and services! I focus on what I can do, not on what I can't.

Last Friday we played 9 holes of golf at a fund raiser in Pleasanton with Kristen
Family fun - Pleasanton
and her boyfriend Ryan. It was fun and I did well initially and then the heat got to me. I was able to get a cart and that really helped. My body shuts down sometimes and rest and shade helps me to get back on my feet. I hit a few good shots but definitely need to spend more time on the driving range if I want my game to improve๐Ÿ˜Š


They are painting our house this week and the disruption is stressful for me. I had to move everything off the front porch and find a place for it in the front yard. I had to move all the plants out of the atrium so that they could paint in there too. I am worried they are getting too much sun out in the front and have anxiety about the whole process. I don't like change anymore, I like routine and to know what to expect in situations. It doesn't make me nervous, it makes me anxious and stressed. That is new for me. 

When people who know that I have Alzheimer's tell me I look great, I always smile because there are a LOT of emotions and feelings going on in my body and in my head that don't show up on my face. I didn't know anything about Alzheimer's until I got the diagnosis and starting reading every thing I could find. Anxiety, sadness, moodiness, exhaustion, constant headaches and tinnitus are just a few of my symptoms. They are manageable and are part of my 'new normal.'

Silly boy Rusty
Most days are good, actually most days are great. Today my head is vibrating a little more than usual even though I slept well, but my spirits are high. I have plenty of support and am very thankful for all of you who continue to reach out and check on me. It really helps! My two cats Rusty & Monty are constantly by my side and really are my 'service' cats. Without them I would be so alone when Bob is working.

I hope you have a great rest of the week and are able to spend time with people you love and who keep you motivated. Thank you for your continued love, support and prayers๐Ÿ™


Tuesday, July 10, 2018

July update!

I guess it's been a few weeks since I've written. The days go by so fast! I try to make a list every day of things I need to do. Some times I can accomplish everything on my list, but most days I can't get it all done. That seems so strange to me. Especially because I ALWAYS got all my AR's done when I was working at Intel. Oh, by the way, 'AR' stands for ACTION REQUIRED. I lived and breathed AR's for over 17 years. There was always something that I needed to do, or that I needed my staff to do. Prioritization was key and I find myself doing the same thing now that I'm on disability/ retired.

But today I don't have very many AR's! I already mailed in the checks to the Alzheimer's Assoc that I received this weekend from two of our friends. Thanks again Katie and Marion๐Ÿ˜€ I made some self donations for our Alzheimer's Walk later this year and sent them off to Intel's Benevity tool so that I could receive a matching grant. What a wonderful benefit that is! I sat outside in the very warm sun and did my meditation after I finished my journaling. Now I find myself at my computer!

We have done some wonderful things the past two weeks. A few days after the Alzheimer's Advocacy Forum we flew to Chicago for my National Alzheimer's Assoc Board Meeting! It was super hot there and thank goodness we had no reason to go outside. We arrived late on Thursday night and the committee meetings started bright and early on Friday. 
Navy Pier-Chicago

The view of the Navy Pier from our room was wonderful and I'm happy we didn't need to go outside to appreciate all that Chicago has to offer. I am also very thankful to be on this BOD! Everyone is committed to finding a cure, raising awareness, increasing funding for research and removing the stigma! What a blessing.

I was very excited to be presenting to the entire board this time, along with two of my colleagues. Our presentation was about fund raising and how to utilize the social media tools and to personalize your request for the Walk (our largest fundraiser). I've been very successful using Facebook so I shared my story and my tips and tricks! Afterwards I received great support and compliments. I'm not sure how often those with Early Stage Alzheimer's make presentations, but for me it's been part of my life forever so I had fun with it. Thank you Karen for asking me to join you and to hopefully help the BOD raise more money this year!

The flight home was good. I was upgraded but Bob wasn't. We were surprised but when we saw that the Warriors championship trophy was taking up his seat we were OK with it! Gotta protect that trophy. Go Dubs๐Ÿ€


Ferry Building - SF
After resting up from two weeks of travel we drove to San Francisco for a 'staycation'. My husband spoiled me with a wonderful spa day at Nob Hill Spa followed by an amazing meal at 'SPQR', a Michelin star restaurant with wonderful flavors and gorgeous presentation. We also had time for dinner with John & Janice Gumas at Kokkari! We were only there three days but made the most of it and took several pictures to document this magical time together. We lived there a few years back and it was fun to visit some of our favorite restaurants and sit outside in the sun at the Ferry Building!
It's back to reality with no more travel planned other than our trip to Italy in September. I love traveling but I love being at home too. I need the comforts of home and the love of my kitties. I don't like to be away for too many days but I know Italy will be amazing and we are going with friends which makes it even more special. 


I hope you all had a safe and wonderful 4th of July and continue to surround yourself with good friends and family that you love. We are missing our grandsons who are in Romania. They don't come home until the end of the month but it's been fun to see them with their cousins and to know they are very happy. 

Thank goodness for FaceTime and texting! I even
Our sweet boys in Romania
tried out SnapChat so that I could stay in touch with Ryan but I have no idea what I'm doing!! ๐Ÿ˜Ž Next week Bob is going to spend a few days with two of his sons to celebrate their birthdays, and one of my best friends is coming to visit me! 


Thank you Monica (and Michael) for taking the time to fly across the country to help me with my infusion #15 and to just be here for me๐Ÿ’œ My friends and family continue to surround me with love and support. What a blessing!

That's my latest update! My sleep continues to be a problem but I am doing pretty well and only need a small nap late in the day. My ears ring constantly but I'm almost getting used to it. There are many things I can't do well, but I don't focus on that! I focus on what I CAN do and I continue to surround myself with loving people who I know will help me no matter what I need.

Have a great day and thank you as always for your love, support and prayers. God bless you๐Ÿ™






Thursday, June 28, 2018

This really is a full time job ๐Ÿ˜Š

To say we’ve been busy is an understatement! Just a few days after I wrote my previous blog I flew to Washington DC for the Alzheimer’s Association National Advocacy Forum. I flew alone and was able to get to the hotel with an Uber ride. I'm so glad I can still navigate airports and find my way around! Last year the event was at the same hotel so I felt comfortable there, and finding the elevators and my room was pretty easy.

2017-2018 ESAG
I was there alone because Bob had commencement at Cal Poly and would be arriving a few days later. I had to arrive on Friday because we had our last Early Stage Advisor Group meeting and other events leading up to the Forum on Sunday. I can’t believe it’s been a year since I was chosen for the group! What an honor. I met some great people who are now dear friends, all who have Early Stage Alzheimer’s. I really hope we can stay in contact and see each other again๐Ÿ˜€


Sunday the ballroom was filled with over 1200 people and the energy was contagious. I was surprising comfortable with the noise and all the energy in the room. Normally I don't do well with loud noises and have to carry ear plugs so I don't get too stressed out. The event is very well planned and the training we received before heading over to 'The Hill' on Tuesday was great.

Bob finally arrived after a missed connection early Monday morning! I felt so bad for him. He was exhausted and went to lay down while I attending some meetings. I'm not sure he ever recovered from flying overnight and arriving in the morning.

Marsha Gay Harden & Senator Susan Collins
Monday night was the big event with formal dinner, awards and a few speakers. I was honored this year to be chosen as one of the advocates to speak about the work I’d done and WHY being involved is so important to me.

At first I was worried about the large crowd, and the fact that I hadn't used a teleprompter before. They let me practice and I realized it was much easier than trying to memorize the speech or read from my notes. It is so intuitive and stops scrolling when you stop talking! What a great technology.


I was also happy to see that Senator Susan Collins was speaking, as well as actress and writer Marsha Gay Harden, and others who received awards for their advocacy and dedication to the cause. I knew it was going to be a great night! They are all wonderful strong role models.

Everyone who was honored, including Richard Lui who has been our master of ceremonies for two years, were very humbled and appreciative of the recognition.

When I got on stage that evening I was surprisingly comfortable and excited. Not really nervous at all! The view from the podium was magnificent and I couldn't resist telling everyone how beautiful they looked. I shared my story of getting involved and committing my life to finding a cure and raising awareness. I also shared a little of my journey of living with Younger Onset Alzheimer's disease and how it changed my life, and that of my family forever.

When I was finished everyone stood and clapped and clapped! I was so taken aback. I just stood there and said thank you, God bless you, thank you, God bless you....about three times. I finally walked off the stage with a huge smile on my face! That event and the opportunity to speak was something I hope I never forget. Thank you to the National Alzheimer's Association for your support and your continued faith in me to share my story and deliver a message of hope๐Ÿ’œ

Our Team!
Tuesday was our last day and a busy one too. We got up early and met with our Congressional team to practice our 'pitch' that we would be delivering that day. We all had a connection to Alzheimer's and each of us had a role to play. We weren't able to see Senator Diane Feinstein or Congressman Swalwell but we did see their staff.

I was in DC for five days and got so much out of the interactions with my peers and the staff of the Alzheimer's Association. I met some new friends and have been texting with them and staying in touch. Events like these are important to me even though they are exhausting. I did a good job of resting every day before dinner and went to bed as early as I could. I would do it again, and I hope I can do it again next year. It's important and it's something that I love

When we got home we had a days rest and then we drive over to UCSF Memory and Aging Center for a full day of testing for my clinical trial. As I said, helping to find a cure and advocating for Alzheimer's research is a full time job for me now!!

Thank you for your continued support and prayers. All of you lift me up and keep me going๐Ÿ˜˜





Tuesday, June 12, 2018

It’s summer time ๐ŸŒž

In my last blog just twelve days ago I was whining about the cold weather. Boy did things warm up quickly! I think it’s going to be 90 degrees today.  That’s pretty hot for us in Danville. I’m happy about that and went swimming for the first time last weekend. Ryan and Michael were staying with us (our grandkids) and we had so much fun! There’s nothing like getting in the water when you’re hot and tired.

Michael being Michael
Ryan & his buddies
It’s been another fun filled month so far! Ryan and Michael ended the school year and Kristen and I were able to be there for their festivities. We helped with the party in Michael’s 2nd grade class and also helped set up for Ryan’s 5th grade breakfast. It’s such a blessing that we live close to the school and get to see them fairly often. It’s hard to believe Ryan will be in Middle School next year! Yikes, where did the time go.

Many of you know I was serving on the Nor Cal/Nor Nevada Alzheimer’s Association Board of Directors. Sadly my term came to an end. There were several others who were terming off as well. They did a great job of thanking us! They had cake, champagne and gave each of us wonderful gifts. What a great night. I actually cried when they thanked me for my service. It’s hard to say goodbye sometimes, but thankfully I will still see many of them going forward.
The next day I flew down to Palm Desert to spend a few days with two of my best friends!
Doug and Linda May๐Ÿ’œ
Pam, Doug & Linda
Doug and I worked together at NCR over 20 years ago, and when he introduced me to his wife we became instant friends. They used to live in the Bay Area but are both retired now and have a beautiful home on the golf course in Palm Desert. We had a wonderful time and some amazing meals. We also were able to watch the Warriors win their 3rd game against the Cleveland Cavaliers. Wow, that game was stressful and I’m so glad we were all rooting for the Warriors.

Gorgeous view from their house
There is so much peace for me when I’m around people who I love, and who love me. There are no expectations at all. More importantly there is no stress. I’m so thankful for their friendship and hope to see them again soon when the weather cools down. The average temperature down there is 106 degrees๐ŸŒž But it’s a dry heat! At least that’s what people who live there say......

Bob and I spent Sunday in San Francisco at Maria Shriver’s event, ‘Move For Minds’. This was the second year we attended and it was sold out! The event took place at the Equinox Sports Club and following the workout there was a fabulous panel. I also had the opportunity to speak again this year, and to remind everyone ‘what Alzheimer’s looks like’. I cried a little and so did many others, but that’s normal for me when I talk about the personal side of this disease.
Pam, Bob & Maria

The workout was specifically created to focus on your mind and your body. It was hard and I was sweating and breathing hard but I didn’t stop! One of the research assistants from UCSF who we have become friendly with attended as well. It was so great to have her there. She is an amazing young woman and I can’t wait to see where her life takes her after she graduates from medical school. Bob and I always look forward to seeing her during my infusions and cognitive testing for the Roche/Genentech clinical trial.

Friday I fly to Washington DC for the Alzheimer’s Association Advocacy Forum! I’m flying alone but Bob will join me on Sunday. I’m not very familiar with the Dulles airport so they are getting me an escort to ensure I don’t get lost and make it to the hotel๐Ÿ˜๐Ÿ˜ I think I could probably find my way to the hotel but I get anxious and nervous when I am in strange locations by myself, and Dulles is definitely not an airport I have frequented often.

I’m ok with flying alone and with navigation SFO, but I don’t want to take any chances of having a panic attack when I’m by myself. I really appreciate all the accommodations the Alzheimer’s Association provides for those of us living with this disease. They make it so easy to ask for help.

So that’s what’s new with us. I have another busy weekend coming up and Bob is busy too. We have a strong balance between work and fun and do a good job of not overcommitting. We certainly make a great team and he does a fabulous job of making sure I am happy and well cared for๐Ÿ’œ Lucky me!

Thanks as always for your love, prayers and support ๐Ÿ™ They really mean a lot to me.